Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Grommets: not the result we expected

30 replies

Arabica · 14/06/2008 17:53

DD (2 in July) has global developmental delay with no diagnosis, and her speech/language development is probably the most delayed thing about her. When we discovered she had glue ear and a combination of sensorineural and conductive hearing loss (threshold around 50db, both ears) we hoped (and were led to believe) that grommets might make a big difference, but there has been no change in her ability to communicate.
I still haven't had proper follow-up but her permanent hearing loss is probaly only around 30-40db which the consultant told me briefly by phone, wouldn't account for her total lack of speech, babbling, pointing or even copying of makaton signs--save for the very occasional 'hello' or 'goodbye'.
I don't think there's any concern that DD is on the autistic spectrum.
Just wondering if anyone else's child had a similar sort of speech/language delay at her age and how it's been tackled? She has SALT support but we're waiting to see audiological consultant on 25/6 before our next appt with SALT.

OP posts:
Arabica · 26/06/2008 23:06

If she is still showing a 35-40db loss in a couple of months they're going to reconsider the hearing aid issuebut I'm going to stay positive! Obviously there is nothing wrong with hearing aids and I'd somehow try and keep them on her if she needed thembut they're such a faff.

OP posts:
misscutandstick · 10/02/2009 14:14

i was just trawling back, and i was wondering how your DD's hearing was going?

Arabica · 10/02/2009 18:47

Hello!
DD is now two and a half and still has no speech, or even gestures, really, but her hearing is now thought to be normal with a possible mild permanent loss in the left ear--being tested again in March.
SALT thinks the hypotonia has something to do with it but won't be the whole story,as where hypotonia is the sole issue, they tend to make more attempts to speak than DD does. She certainly seems to understand more of what is going on in her world and sometimes brings me her jacket as if to say, 'going out time now!'. But still no makaton signs and it's still a struggle to know what she wants, even basic stuff like a drink or food.

OP posts:
misscutandstick · 10/02/2009 19:01

well it sounds like good news about hearing, will keep my fingers crossed for march for you and of course your DD.

The understanding is also good news . I assume she also understands the Makaton also, even if she doesnt use it?

Arabica · 11/02/2009 00:06

I don't know about the makaton. I think it's the voice she responds to. But we continue to use it nevertheless.

OP posts:
New posts on this thread. Refresh page