Continuing Care funding/Personal Health Budget

[Becca9]

Hi, I wondered if anyone has experience with applying for Continuing Care funding or a Personal Health Budget for children.
My 5-year-old twins both have severe cerebral palsy, and one of them also has Lennox-Gastaut Syndrome. A friend mentioned that we might be able to get continuing care funding to help with home nursing for them, but I'm not sure if we'd even be eligible?
If we did get the funding, how does it all work? Would we have to find and hire our own carers?
Any advice or insight would be so appreciated! Thanks so much. 💐

DS1 does.

It isn’t an easy or quick process.

It goes on needs rather than diagnosis. The circumstances of each individual case should be considered but most DC eligible will have at least one severe or priority score in this national framework. Although some won’t but will have multiple high scores. And, as I said, individual needs and circumstances should be looked at even if DC aren’t hitting those criteria.

If eligible for children’s continuing care funding, you don’t have to have direct payments (one way a PHB can be paid), so you don’t necessarily have to find/employ your own carers if you don’t want to.

Even if DC are eligible, it may not be nurses that are funded. It depends on the care needed and delegated tasks. It may be carers.

Thankyou that's really helpful! 💙 Looking at the criteria it does like they could potentially be eligible, it probably is worth applying. If they got accepted would we keep having to go through reassessments or is that pretty much it unless anything changes?

Cases are reviewed. Not quite the same as an initial assessment.

Ok thanks. 😊