Worried for my autistic dc future

[erasingus]

Is anyone else feeling a real sense of anxiety due to so much in the news about welfare cuts and the threads on here saying how the ND will have to just get jobs. It feels as if everyone thinks it’s a choice ? I worry for my
childrens futures

We can’t access nhs therapies as waiting lists so long and we use dla to fund private SALT and OT and psychology etc.

Ive even seen comments saying it’s time to stop paying for autistic people’s food preferences (I assume they mean in relation to arfid?) my son was hospitalised and needed an ng tube it isn’t just a choice.

Im worried the benefit cap would be extended to families in receipt of dla as well

I thought I’d start a thread for those of us worried about these changes and the future.

Does DS have an EHCP? If so, therapies can be included in there. I am not saying you shouldn’t receive DLA, just making you aware of avenues of support.

I am very very worried, op 😢 x

No we are in the process of applying for a needs assessment. I wonder though will cuts be made with EHCPs too soon as well. Or things like direct payments for short breaks. It’s awful .

At the moment, there isn’t talk of changing that element of EHCPs or removing DPs or short breaks funding.

Yes, I'm worried too.

Not about this financial side of things per se, but worried in general for how they will continue to manage life in general!

Very stressful, constant feeling that things will only get worse, because they will unfortunately

In some ways the new plans are comforting to us as my child has ASD, ADHD and severe GDD. I can't see how he will ever be able to wipe his own bottom, let alone work. They did say people like my son who are not likely to not progress will only have to go through the assessment period once, but I'm assuming there will be a tribunal when it comes to PIP as no doubt they will make it hard as possible to get it sorted first time.

I hate it when the government say "we are making difficult decisions" it isn't a difficult decision. They are going for the easy option of making life difficult for vulnerable people as they are too chicken shit to tax wealth. They are cowards and they are shamefully taking the EASY option.

@YouFetidMoppet don’t think the proposed changes won’t affect DC because they have a high level of needs. The proposed changes to LCWRA will hit people exactly like your DS.

He is ten years away. Hope things do change in that time, but I don't understand the system for adults, only children. I wonder if this will just lead to parents trying to find residential places for their children instead of keeping them at home.

It really is disappointing that this government has no balls.

You’ve got to ignore all the ignorant people on MN. There is an agenda atm to say that autism doesn’t have a proper diagnostic criteria and anyone can pay for a diagnosis. 🙄🙄 MN used to delete comments like that but are now leaving them up.

These people can fuck off with their ‘it’s time to stop paying for autistic people’s food’. 1 in 2 people get cancer nowadays. Nobody is immune to sickness or disability…

The elephant in the room is that furlough payments are what really caused the big black hole! They were happy to accept that weren’t they?

Yes, see, my adult daughter receives LCWRA but it gets paid straight to the council because it means they can ask for a contribution to her care bill. If she loses that, she simply won’t be liable to pay it any more. It would affect young adults still living at home though.

@Lyannaa yes, some won’t be affected overall because it will just mean the council needs to top-up care more. However, it won’t just affect young people living at home with parents. Some receiving CHC funding, which isn’t means tested, will be affected. The rules around when PIP can be paid to those in receipt of CHC funded care can be complex because it depends whether it falls under the hospital rules or not and when DC began the placement. But, UC can still be paid, so these people, who will all have high support needs, will still be affected.

I am hoping this stuff won’t actually get through parliament tbh. As if things aren’t bad enough.

I remember when the markers came back high for Down Syndrome during my pregnancy and the pressure to abord was absolutely immense. I'm sure soon the pressure on parents who have a family history of adhd/asd or any other conditions will be equally high not to reproduce, and the argument will be made that as parents had an informed choice, their children don't deserve any support. They'll probably create genetic tests for neurodiversity and other issues soon.