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I need your experience - mild autism, speech and language delay/disorder and a multilingual background.

49 replies

1066andallthat · 28/04/2008 21:48

DS2, 4.5, has limited speech - two/three word phrases. I'm not sure of his understanding - sometimes, it is OK and others, he is on another planet. He doesn't have hearing problems.

Initally, a year ago, a SALT and a developmental expert (not doctor) said it was autism and to only use Spanish. We live in an area with a regional language and speak English at home.

The school received considerable extra help and DS2 got weekly sessions at a local under 6 intervention centre. The therapist there says she doesn't think he is autistic. He has been very uncooperative in school. He used to bite a lot. He disconnects and appears to be in cloud cuckoo land, although it isn't that difficult to get his attention back.

A nasty separation and a year later, DS2 is making progress but is clearly struggling with language. He babbles a lot. He tells me things - often, no idea what. If I give him a very clear question, he can use part of it to answer back. We don't have conversations per se but he is trying to initiate them, just can't keep them going.

We are about to start tests at the local hospital - with a possible referral to a neurologist. The team has a good reputation. So, my questions are: do you have a child with mild autism and what are they like at home? Does your child have a speech delay at 4.5 and how are they coping? DS2 responds well to Something Special - Makaton - and the Hanen technique. How do I know if it is delay/disorder? Given that everyone is saying speak Spanish only, is there any validity in the one language approach?

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1066andallthat · 30/04/2008 23:08

Thanks, wads.

Yes, I have always used English with my DSs, much to some puzzlement here. Although I speak Spanish to a good level, it is simply not the same as my English - I can sing, tell stories and be me in English; in Spanish, there is something missing; probably a richness of language and culture.

When you get a moment, can you tell me more about your DS? Is he older than mine? When did they discard the autism-diagnosis? How has he coped at school?

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BriocheDoree · 01/05/2008 19:35

Hi 1066, my DD is nearly 4. We took her to a speech therapist not long after she started school as she just seemd to be off in her own little world a lot of the time. We had assumed that it was just because she was bilingual, that she was a bit delayed. Wasn't until I really started listening to how much the other kids were saying at age 3 that I realised she was quite behind and the therapist pointed out that she has a big receptive delay, so often I thought she was just being a bit naughty and ignoring me when I asked her to do things, but actually wasn't understanding what I was saying half the time! Now I can see she's really quite behind and I have all the usual guilt for leaving it quite a long time! She seems to like her school, but the teachers don't really know what to do with her as she doesn't really do any work unless someone is alongside her all the time, getting her to concentrate. I do what I can with her during the day but it's tricky as I also have a 9 month old DS who's crawling all over the place. Wads, I also would love to hear about your DS. I've only just started finding out about all this and it's a bit daunting sometimes!

wads · 01/05/2008 20:36

ok a bit more about DS. He's now 7 was a premmie & low birth weight but never had any health probs. We noticed his language delay first but now looking back & comparing him with my DD's who came later he had lots of other issues - sensory & motor amongst others. He started to see a developmental specialist when he was 3 but I took an instant dislike to her & altho' we continued to see her for another 3 years, mainly through lack of choice & because she could open doors for us in areas like school support, we never agreed with her Aspergers/HFA diagnosis. Neither did Ds's speech therapist, sensory therapist or support teacher. He's had school support for nearly 4 years now & is currently ( & amazingly!!) keeping up with colleagues in year 1. His current support is 4 afternoons a week.
WE've since switched dr's & his diagnosis is DAMP - deficiency in attention, motor skills & perception along with his obvious speech probs. He still has weekly speech therapy & will need it for a long time as he has real pronunciation difficulties, along with various other things. He also did 2 years of riding therapy & now attends a "normal" riding club on Saturdays & also did 3 years of sensory integration therapy.
With hindsight I think some of his early anti-socail behaviour that make me think it could be autism were partly due to massive frustration at not being able to communicate because of language difficulties, but I still believe that I made the right choice in continuing with both languages & that the long term benefits will prove me right - anyway as I didn't do it any other way we'll never know!!!
Ds has come on leaps & bounds but is still very immature compared to his peers. He has been lucky to have the same classmates since age 4 who all know & like him, & are happy to look out for him & help him along.
Ok now I can smell dinner burning! I'll try to come back later

wads · 01/05/2008 22:19

so just to add that it has taken me years to get to the point where I don't daily stress about what will happen to Ds in the future, should I have done things differently etc etc. And of course I still have those days - the 1st day I had to "abandon" him in the playground 30 mins before school started as I had to be at work, I was sick to my stomach about how he would cope. Of course he was fine.
Anyway 1066 you should go with your gut &, as my mother told me early on (thanks mum xx!) accept all the help, support, therapy you can get. Boa sorte

1066andallthat · 02/05/2008 10:16

Daunting and overwhelming are definitely some of the key words, some of the time, Brioche.

Yes, DS2 sounds quite similar to your DD in terms of needing one-on-one to keep him on task. But, then, he also resists direction - he had passive resistance down to a fine art - sitting under the table, lying down and his "No" has always been very clear. He has recently improved and suddenly is into age appropriate activities like sticker books and books. He only goes to school in the mornings, as he is a happier soul at home and I get time with him, this way. At home, I let him join in - have been told I am too liberal.

Guilt - being a lapsed-Catholic - I just took that as part of being a parent. No, it is hard but MN helps and lets be honest, we do our best and that is all anyone can do.

DS2's school is quite old-fashioned but they have got on top of the help - his main-class teacher now has a TA. DS2 has twice weekly sessions with a language specialist and extra time with two or three other teachers. He is very at home on the computer.

Thanks Wad - yes, it is similar here - DS2's schoolmates are very supportive. He seems quite popular - a young rebel figure and indeed, it is sometimes like "Cheers" when we arrive, they all chorus his name.

He doesn't appear to have any additional physical problems but we are at the hospital this week to start tests. The initial team were very helpful in getting additional support but their report was so at odds with the child I have at home, it shook me to the core - could I have missed that big a problem? Then, his English is so much better than his Spanish or Galician and they still wanted me to drop it.

Know what you mean about the future - I think things may settle if we get some sort of diagnosis and on that, decide to stay or not.

Thanks again to you all - - much appreciated.

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1066andallthat · 04/05/2008 10:17

Morning - Brioche - just seen you on the other thread. You were up early! A quick offer: would you like my copy of Hanen? I don't tend to hang onto books, so I am looking to rehome it, if you'd like it.

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Tclanger · 04/05/2008 19:00

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BriocheDoree · 04/05/2008 19:25

1066 yes, I'd love it!
Also yes, DD was up at 4.30 this morning! Having trouble with her at the moment, not wanting to go to bed and waking up really early. Think it's all the extra daylight. Thanks TC - really enjoy reading your blog. Your DS is a bit older than mine so I feel that you're a little bit further down the road and it's SO reassuring to know that DD is not alone!! Will look into the Debbie Feit.

Tclanger · 04/05/2008 20:04

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1066andallthat · 05/05/2008 10:20

Oooh - sleep - feel for you both. Mind you, my two and the cat always migrate - four in a King-size bed is OK but when they all try to get in a single with me, it is not so good .
Brioche, do you want to email me: catherine ann 1966 @ yahoo.es (there are no spaces in the address, just run it all together) and I'll get the book and dvd in the post.
Tclanger - any replies on your blog about SLI and multilinguals? Will email you through it as very interested in the ICAN two-day assessment, but have a feeling it will be beyond my finances.

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moondog · 05/05/2008 10:33

I'm happy to stand by that T.
As i said, there may be problems dealing with two languages but in these cases there will invariably be problems dealing with just the one anyway.

Tclanger · 05/05/2008 14:04

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Tclanger · 05/05/2008 14:29

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BriocheDoree · 06/05/2008 10:20

1066, I've just sent you an email.

Tclanger · 06/05/2008 10:22

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Tclanger · 06/05/2008 16:13

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BriocheDoree · 06/05/2008 16:32

Hi TC, had actually sent an email to 1066...but I'll also email you the study I sent to her about multilingual kids with SLI. You might be able to pass it on to other people who get in touch with you via your blog. It's kind of technical (had to look up quite a few of the terms myself) but it's also interesting. However, might not get a chance to do it tonight as I'm out to dinner with the girls!

Tclanger · 06/05/2008 19:01

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1066andallthat · 07/05/2008 13:50

Hi Brioche,

I actually quoted it today when yet another person suggested I spoke more Spanish at home - ah, it felt good to say: "That is a valid point unless you consider ......" and watch someone back down .

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Rachel2012 · 15/03/2012 14:24

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StarlightDicKenzie · 15/03/2012 14:43

I'm happy to help. Which university is it?

moondog · 15/03/2012 17:34

I'll gladly help.
I'm a parent and an s/lt.
Message me.

Catsdontcare · 15/03/2012 18:13

Happy to help if you want to pm me

Rachel2012 · 15/03/2012 19:08

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