Thanks for advice, I'll have a look at Steps.
Yes, she can swim (both in is allowed to and it a really good swimmer as well!) so we have been going 4-5 times a week. Playing havoc with our hair, but good as at least there she is allowed to jump.
We are really luck that she is a) under 5 b) not overweight and c) not ADHD. But not so good as she has 90% femur head involved - basically the whole head of her femur is flaking off and on x-ray we can see a fracture right across the top of the ball. Also she is a girl, and therefore has a worse prognosis.
I feel a bit bad posting here as she doesn't have a permanent special need, it will get better in the end. I'm not going through the emotional roller coaster you guys have to be on so often, it is self limiting and will improve as long as we make sure we don't let her move around too much.
Consultant (we are in Glasgow, and as Scotland has a relatively high level of Perthes, luckily he is a real expert) has referred us to OT for a wheelchair or major buggy (would prefer buggy as she can walk a little and I use a lot of public transport. But it is taking ages for the referral to come through. Anyone know how long it shoudl be?
Also, I am concerned about starting school, as she will have to stay in at break and lunch as well as missing all PE - I dont want her to be left out.
Lastly, does anyone have ideas about things to do with a previously VERY active child who now has to sit down all the time, which doesnt mean watching TV or computer games. We have played a lot of board games, She is learning to read and I am thinking of teaching her to make pompoms and to knit (I could at her age). We can do a lot of baking sitting down at the kitchen table.
thanks for being so welcoming to a kind of fakey SN mum.