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Speech delay, auditory processing disorder or ASD? - help!!

15 replies

KT14 · 20/04/2008 11:30

It's taken me months to pluck up the courage to write this, I think I'm a bit scared of what I'll find out.. if anyone could help me I'd so appreciate it as we're stuck in pediatric waiting list hell at the moment..

DS1 is 2.8 and has only approx 150 words amongst an awful lot of jargon, he is only stringing the odd tiny sentence together. He still can't copy our speech for more than one word at a time. He had about 20 words at 18 months and then development stagnated for ages. It's only in the last few months with lots of effort with books and vocabulary dvd's that it's started moving again. His understanding of 2 step instructions is ok, but I don't feel he has much abstract understanding, if I say we're going to the park and then Granny's house, I'm not sure he's taking it in.

DS1 hit all his milestones as a baby, and his motor skills are fine, but pointing and clapping were slightly later than other babies his age. He still gestures less than other children although he will point, clap and wave, and occasionally copy us dancing or similar. He is a really happy, placid child but his social interaction concerns me - he is sometimes oblivious to other children around him, he'll join in a chasing or physical game but will happily play alone most of the time. I know this is fairly normal for his age but it does concern me that he can totally ignore children who make attempts to play with him.

Eye contact is generally ok although he can be a bit reluctant sometimes. We have had doubts over his hearing and been down the glue ear route but the latest test said he's fine. He does tend to poke his ears though, as if they're blocked. His jargon gets worse when this happens.

In many ways I am convinced he has an ASD except that there are no obsessions, rituals or odd behaviours at all, the odd lining up of toys or spinning wheels but we're talking a couple of times a week not constantly. I am hyper sensitive to this because of its significance but it doesn't seem to happen more often with my DS1 than other toddlers we know. There is no need to put DS1 in any routine, as long as he's fed, has toys and gets sleep he's happy wherever he goes. In some ways he's almost too easy, (I know that sounds insane) he just seems so self contained - he doesn't seem to nag for things or assert himself the way other toddlers do. There are very few tantrums.

We had a pediatric appt back in Jan - DS1 tested age appt for everything other thant speech and language, to my amazement as I didn't think he'd co operate with the tests. I can't get rid of the worry that it's more than a speech delay though. To complicate things, DH was almost non verbal until 5, with many ASD like behaviours, which then totally cleared up once he went to school. Ironically, now he's a senior manager and a real people person. Totally bizarre and the only explanation we've been given is he may have had auditory processing disorder. Does anyone know anything about this, I'm struggling to find info?

Sorry to ramble on, I'd love to hear what anyone thinks, and thanks so much for bothering to read all of this!!

OP posts:
Tclanger · 20/04/2008 11:58

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Tclanger · 20/04/2008 12:00

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KT14 · 20/04/2008 12:50

thanks Tclanger, weirdly DH is also a qualified accountant, so is his father, who is v similar.. is there a spooky pattern going on here??
Pretty much all DS's words are nouns, this morning he said tickle which is a tiny bit of progress!
DS does have speech therapy at the moment but sessions are only every 6 weeks or so,for an hour each so not enough to make any kind of real difference. They think he's making progress but it's painfully slow. He has also just started at a child development centre where he gets one-on-one help once a week. It might sound like we're doing a lot but it doesn't feel that way when I see how different DS can be from other children his age. I don't want to label him, other than to access the help I think he may need.

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Tclanger · 20/04/2008 13:27

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Tclanger · 20/04/2008 13:29

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KT14 · 20/04/2008 19:52

Thankyou so much, I've looked at your blog, your ds is gorgeous!

It would be nice to believe the Einstein theory and think that delayed speech is a sign of his exceptional intelligence but unfortunately I don't think it is in this case (although possibly it was in his father's case, you never know)!! I'm not sure I'll read the book either..

Not the best day with my son, he's a bit under the weather and has been far less communicative than usual. Days like this can be scary, it feels like we're taking 2 steps forward and 1 back. Roll on the next pead appointment..

OP posts:
sphil · 20/04/2008 20:19

Hi KT14
Your post brought back so many memories! DS1 (6) was very very similar to your son as a toddler - even down to the noun vocab, which I'd forgotten until now. By 2.8 he was speaking in sentences but was still behind his peers. He has always been an exceptionally easy child and is also very self-contained, though his social skills have really taken off in the last year. Over the years I've considered all sorts of diagnoses for him but have come to the conclusion that although he has traits of dyspraxia, AS and APD he probably doesn't have enough of any to fit into any particular box. He goes to a school which is brilliant for him - lots of emphasis on individual strengths - and is making very good progress, even in things like PE, which he finds very hard.

I'm not sure this has been any help, but hope it reassures you a bit .

Tclanger · 20/04/2008 20:34

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TotalChaos · 20/04/2008 23:33

my DS (4) sounds very similar indeed to your DS. With similar sort of outcome of HV checks/paed appointment. The overall conclusion was that DS probably wasn't on the autistic spectrum, and any problems he has socialising with other kids are probably due to his language issues.

In terms of "abstract"understanding - try using photos to backup what you are saying.

Shells · 21/04/2008 00:39

Hi KT. Its horrible when you're so unsure and I bet you're getting the 'oh, he'll catch up' comments from other parents, which aren't very helpful when you're worrying. I got one this morning! My DS is just 4 and has a delay and a disorder we think.
I just wanted to tell you that he plays a lot on his own too and seems in his own world a lot (although less as his language gets better). Our educational psychologist said it is his 'way of coping' with his inability to process language quickly.

It makes a lot of sense to me. I expect him to withdraw for a bit of every day and just see it as re-charging time for him and try not to worry too much about it.
He does play with other children a bit (not as much as I'd like) and is slowly getting better at it.
Auditory Processing Disorder seems to be very common with speech problems. DS struggles at parties, in crowds etc.

TotalChaos · 21/04/2008 00:42

btw DS's sociability/awareness of other children has improved a lot over the last year (his expressive speech has also come on a lot, still big problems with his receptive speech).

KT14 · 21/04/2008 12:51

thanks so much everyone, it is so reassuring to realise there are others in the same boat, I tend to see a lot of friends with very bright children and it can sometimes be painful to be around them, although I'd never want them to feel uncomfortable sharing their children's achievements with me.
I think it may well be the case that DS currently has autistic traits due to a language problem but is probably not on the spectrum. In some ways this scares me as if he falls into some no mans land it may be hard to get a diagnosis and therefore any help for him. It scares me to death that he will be going to school next year (he's an Aug baby) does anyone know if it's possible for children to start a year late in these kind of circumstances??

OP posts:
cyberseraphim · 21/04/2008 13:13

My social worker asked me if I would like to defer school entry for my DS - but we didn't need to as his birthday is just after the cut off date so it sounds like it is possible?

TotalChaos · 21/04/2008 13:20

If kids start after they are 5 they normally end up going straight into year one - which isn't really going to help. I would speak in first instance to your local parent partnership to get a feel for whether your area is OK with kids starting late and whether they can start reception late.

PatsyCline · 21/04/2008 13:22

Hi KT14,

Apparently, by law, children have to be in full-time education by the start of the term following their fifth birthday, so your son wouldn't need to go until Sept 2010 (if I have worked that out right!).

However, don't be too quick to delay school for your DS. My DD1 had similar problems to your son and I worried tremendously that she wouldn't cope with school. I turned down a school nursery place for my DD1 as I thought it would be too tough for her and then she went to a small school at age four and it went far, far better than I expected.

You will be amazed how much your son will change between now and September 2009, but at least you have the 2010 date to fall back on if you are still worried next year (ring your local LEA to check 2010 is okay.)

Good luck,

Patsy

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