Hoping for some advice / signposting.
Someone I know has a baby who was born with lots of physical challenges (including spina bifida among others issues), but primarily issues with bladder and bowel, bladder is exposed outside the body and has ileostomy, stoma etc.
Baby is now around 20m old and cannot have corrective surgery until they reach a minimum weight which is slow, plus other health issues are complicating this. Until surgery they are unable to get any childcare provision as the nurseries won't take baby due to infection risk.
She is trying to work full time from home with baby, but is struggling to juggle workload demands and baby, plus has a 6 year old also. No support from family or DH.
What financial support might she be able to get to allow her to give up work and focus on family? Or reducing hours to part time to increase eligibility for tax credits?
She says they're not entitled to DLA or carers allowance as baby needs no more care than any child that age (but that they cannot go into childcare surely changes that?). She has been to CAB and has come up empty.
Grateful for any advice anyone can offer.