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29momth old limited understanding

4 replies

Mumofone89 · 31/08/2024 19:59

*disclaimer my child has been seen by peads. Has had hearing test, (at time of same back clear) reviewed by ENT and at time of appointment had fluid on one ear however resolved by time of hearing test. Has been seen by speech therapy with very little outcome or much feeedback.

My 29momth old girl is, in my opinion and opinion of professionals l, behind in milestones.
Areas of concern
Twirls hands when excited
Has only pointed on a few occassions.
Few words.
Limited understanding of commands.(which is most concerning for me)
Does not seem interested in communicating with me.
Can feed herself but prefers not to.
Answers to name but often can't be bothered to look. (Or so it appears)
I often feel she does not pay attention to me. Not sure if this is choice personality or something else going on

Areas she has excelled in
Has been walking from 11months
Very active and can climb for days "into everything"
Can mimic unloading dishwasher and load washing machine etc.
Can recite nursery rhymes with actions to some degree, and speech I can understand.
Mimics miss rachel.
Can use some sign languages whilst watching miss rachel, unsure of her understanding of this. Maybe used "more" sign and "eat" sign a handful of times.
Very affectionate
Wicked sense of humour.
Makes attempts at making us laugh
Pretend plays with dollys feeding them etc
Can use shape sorter. However gets frustrated with more complex shapes and just takes lid off and fires in lol.
She knows animal sounds and often sings eh ay eh ay oh when playing with animals.
Can complete her rings on pole
Can count to 10going downstairs
Claps, waves when she feels like it however not often
Had few words used correctly including Joe, no, ready steady go. Up down , in. Open, 1-10 counting. Animal sounds and animals Bye hi, mama dada. eat.
Can repeats words such as shoes. Enjoys reading books
Would not be able to go and get shoes, however has on occasion lifted my shoes to put on and set on my feet.
Knows when I say to go to the bath.
Knows when it's time to go.
To communicate she will bring me cup to fill or bottle for milk.

I'm wondering if anyone else has had a child around this age with same level of understanding/ speech /lack of pointing and had caught up. I'm also wondering if anyone has used any particular methods.
Thanks in advance

OP posts:
Min133 · 31/08/2024 20:49

Hi, I have a 4 year old. He has autism and global development delay. In September we had our usual appointment with his paediatrician. I reported to her that he only understood 5 words, not communicating using words, no understanding whatsoever, no pointing etc. 2 weeks after that appointment in 1 day he suddenly started naming shapes, colours, numbers and letters. Seemed to me like it came out of nowhere. He never seemed to be paying much attention or taking anything in at home or at nursery. He clearly knew way more than he was demonstrating and was keeping it to himself.

He has come on well since then, showing a lot more understanding, loads more (single) words, is using some single words to communicate and tell me what he wants etc. He is still behind his peers in most areas but now has a couple of areas he's on a par with peers or slightly ahead and this time last year I wouldn't have expected at all to be able to say that

Mumofone89 · 01/09/2024 09:42

Min133 · 31/08/2024 20:49

Hi, I have a 4 year old. He has autism and global development delay. In September we had our usual appointment with his paediatrician. I reported to her that he only understood 5 words, not communicating using words, no understanding whatsoever, no pointing etc. 2 weeks after that appointment in 1 day he suddenly started naming shapes, colours, numbers and letters. Seemed to me like it came out of nowhere. He never seemed to be paying much attention or taking anything in at home or at nursery. He clearly knew way more than he was demonstrating and was keeping it to himself.

He has come on well since then, showing a lot more understanding, loads more (single) words, is using some single words to communicate and tell me what he wants etc. He is still behind his peers in most areas but now has a couple of areas he's on a par with peers or slightly ahead and this time last year I wouldn't have expected at all to be able to say that

What a lovely message. Your little boy seemed to come along when he was ready.
My little girl at times surprises me, but on a whole she seems not that interested in interacting or communicating with us, except on her terms. She is using a lot of hand leading at the minute to communicate what she wants. Eg into the pantry when she's hungry and whole hand pointing to what she wants. Do you remember what your little boy used to use to communicate at 2 1/2?
My little girl is also very prone to infections and sickness and has a total of 6 febrile seizures, the most recent this week. I try to hold off and not be so hard on her, but she is defiantly not placing where she should be next to her peers.
We have an appointment with OT who specialises in autism next Monday. I'm hoping she'll give us tips to help support her. We also attend a private speech therapist with her who is concentrating on her concentration at present. We have been waiting from she was 15months for any support from the NHS, despite continues prompts

OP posts:
Min133 · 01/09/2024 09:55

At 2.5 he was only leading by hand to communicate what he wanted. Would lead me to the sink for water, door to go outside, to the snack cupboard mostly 🤣. No words but I knew by his various non verbal cues and the pitch of his vocalisations generally what he was trying to communicate. My little boy was ill alot and I do think that held him back as he always seemed to be ill or recovering from an illness. He also receives support from speech therapists and although not alot seemed to change for a good while it definitely helped him come along by the end. The things you have described that she does (eg repeating words, knows when bath time, time to leave etc) is how it started with my son then he started communicating more and showing more understanding. It's still always on his terms. Sounds like she's going to go from strength to strength x

Mumofone89 · 01/09/2024 09:58

Min133 · 01/09/2024 09:55

At 2.5 he was only leading by hand to communicate what he wanted. Would lead me to the sink for water, door to go outside, to the snack cupboard mostly 🤣. No words but I knew by his various non verbal cues and the pitch of his vocalisations generally what he was trying to communicate. My little boy was ill alot and I do think that held him back as he always seemed to be ill or recovering from an illness. He also receives support from speech therapists and although not alot seemed to change for a good while it definitely helped him come along by the end. The things you have described that she does (eg repeating words, knows when bath time, time to leave etc) is how it started with my son then he started communicating more and showing more understanding. It's still always on his terms. Sounds like she's going to go from strength to strength x

As amazing. I can't tell you how helpful you have been. I be awake most nights panicking what her life will look like in years to come, but to hear from someone else further down the road is great to hear. Thank you so much x

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