PDD_NOS?

[jenk1]

DD has just had a very thorough asessment from a psychologist who specialises in developmental disorders.

his conclusion is

"There are a significant indicators of an ASD in dd,s profile,Certainly they are enough to talk of Atypical Autism or PDD-NOS at this point, and time itself will make her actual status clearer.DD is a highly niave and vulnerable little girl,she is completely trusting and susceptible to bullying and teasing. Play time will have to be carefully monitored.As an absolute minimum dd will require help in learning around literacy and numeracy skills in school, it is likely she will also need help in making links,generalising and developing meaningful recording skills. All of which will require sensitive support attached to her for a significant portion of the day"

i cried when i read the bit about her being highly niave and vulnerable cos she starts school in sept and the lea have not pulled their finger out and called off the tribunal next month to get her asessed, im worried there will be no support put in place for her when she starts and that will be a total disaster and could mean the difference between mainstream working or failing for her.

im confused as to what atypical autism or PDD-NOS is, does that mean she has an ASD, if anyone knows and could explain it i would be grateful.

TIA
jen
x

PDD NOS - Pervasive Developmental Disorder - Not Otherwise Specified - in the DSM iV criteria is commonly used in the US though I think it is less common here. Roughly speaking, the child has some ASD symptoms but not enough to make the 'full' ASD diagnosis.

oh Jenk, how are you now? assessments are hard to deal with.

does your dd get support at nursery? do you have anyone that can help you shake the school into action?

maybe someone on here can make a suggestion about advocacy/parent partnership?

my ds is nearly 4 (but won't start school until he is 5 in Scotland) he is getting support from a multi disciplinary team, is there anything like that in your area? sorry more questions than answers but I wish I could help you.

Seeing things on paper can be very hard. I hope you are OK?
I can't remember where you are with the statement side - is this report for the statement or are you still fighting for an LEA assessment?
I hope the letter gives you the ammunition you need to kick the lea into giving suitable level of support. It is perhaps good that the vulnerable bit is spelt out (this is true of almost all children with asd/ sn)- so often essential support at play and dinner time is completely overlooked!
((Hug))

at tribunal next month to get her asessed.

interestingly their witnesses are the ed psych who hasnt seen her for a year and the senco who tried toilet training her against our and her paediatricians wishes.

i have an inkling they will drop out a couple of days before,asess her and do a note in lieu, i dont think it will be sorted before she starts school.

i should have started much sooner with the process but i was tricked, she was offered an ican place, then pulled off it in october last year as she was too advanced in her speech, looking back now i see it was offered to us to shut us up and stop any asessments being requested.

but i shant give up, she will eventually get the support she needs/deserves.

yes i agree with you magso about the vulnerable bit, although i was very upset reading it, i realised that its a good thing that its in as the tribunal will take that into account if we have to go back to get her statement sorted out.

i emailed the psych this morning and told him i didnt really understand the pdd-nos bit and he said
"what im saying is that she IS on the spectrum, but im not sure where yet but i think it will become more obvious in another year"

so that has explained it to me, i didnt know whether she was classed as a child with an ASD or not, but she is and i havent been imagining things.

she,s 4 on sunday and having a big party, we havent been able to do one for her before cos she was too anxious but she,s really looking forward to it and so am i.

jenk1

If you haven't already get someone like IPSEA or SOS;SEN on board. IPSEA in particular will send reps to Tribunals.

Would certainly not accept any "note in lieu" - bollocks to that!. These are not worth the paper they're written on.

Your DD needs a Statement and nothing less than that will do re her educational needs.

BTW Sendist will hopefully eat this LEA of yours for breakfast!.

got ipsea on board already and have a worker assigned to me who is hopefully attending the tribunal, she,s the same one who helped us fight for ds when he was out of school for 2 years.
she also came to a meeting last year with the lea which the head of education was not impressed with and lost her rag and started thumping the table!
ipsea lady was very very calm and kept quoting the education act at her, we eventually got ds into the brilliant independent special school he,s now in.

have been told off the record by parent partnership that "somebody" in the lea is taking my battles for my children very personally and not at all being professional.

hmm wonder who that could be then?