When is breaking point?

[daisy5678]

I should be really happy. J's now got his full time Statement, after years of trying to up the hours in the original Statement. He now has all the dx's I hope he'll ever have, so we know exactly what his problems are and have a much better understanding with the shock autism dx. Social Services are being helpful and offering play worker support through the Disability SW and respite if needed. I'm getting there with DLA. OT are being great and the sensory intergration therapy is brilliant.

But I am so tired of it all and knowing that all of those services actually mean f all as he's still going to be autistic and such hard work at the end of it just depresses me. He's sometimes such a little star, but his life is going to be so hard, and fighting to get everything just exhausts me. I work full time (8.30-4.30, with lots of work in the evenings) and I just don't think this is a sustainable life forever. And then next year, J changes school and I just know it's going to be such a hard change - I can't face re-educating a whole new set of staff.

Sorry to whinge, but I feel like I'm in a neverending revolving door.

GMS dunno what to say as my childs sn are not autism related but did not want your post to go unanswered.

I don't think you are whinging.Sometimes it helps to write it all down in a rant(.Last night I posted a very self pitying message in Chat about being fed up )

.I don't know how you manage to work full time you sound like a very strong person.

It is neverending though isn't it???I think as they grow older too their differences become more apparent (well its true for dd)Today I was applauding the fact she had managed to put a lid on a jar and thinking that this would be no biggie for a NT child her age.The future is a worry,too.What is going to happen to her when I die is a big one that crosses my mind.Who will be there to speak up for her and understand her ways of communicating?? Anyway I digress as I am probably depressing you more,I'm depressing myself!!!.

You sound like a wonderful caring mum who is doing their utmost.Some days its bloody hard work thoughHugs if you do them,Wrinkly xxx

yep, been there, am there.

my, you work full time AND manage to sort all this out for your DS? you are a star.

The never-ending revolving door is a brilliant image. That is so true. You put so much of yourself into these battles with service providers that it feels like if you could only win this one, everything will be ok. And it's such a terrible feeling of flatness.

Hi Givemesleep! You work full time, have fought (and continue to fight) hard for J, support others - and are coming to terms with a dx you hoped J would never get. I dont know how you keep it up!
Its hard to stay positive sometimes, but sounding off always seems to help me so fire away - we are listening!. Its not quite as hard when you are well rested. Can you reduce your hours, have some time off,or whatever it takes to recharge your batteries? Perhaps organising a (?tempory)shorter working week for the school transfer will help? ((Hugs))