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Positive autism stories

8 replies

MumsyAm · 05/08/2024 09:23

Positive autism stories?

I’m really struggling right now. I have a nearly 3 year old son who is autistic but yet to be diagnosed. He came on leaps and bounds with development in terms of his speech, understanding and he’s clever I feel. However he has zero patience, is very controlling and inflexible. He can have violent meltdowns.

I now have a five month old who is very clearly autistic. He barely makes eye contact, hardly ever smiles. He arches his back with feeding and generally and just moans and groans a lot. He’s always wanting picking up or cries. Lately he’s been screaming a lot.

I feel so depressed. I’ve tried to be neuroaffirmitive and positive but with how hard my eldest is and now the worries for my youngest boy too I just feel so overwhelmed with grief. I feel paralysed by fear now about my youngest.

Has anyone got any positive stories to tell?
I need some hope to hold on to.

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beetlejuicebeetlejuicebeetle · 05/08/2024 11:31

When I feel like this, I look up all the famous people who have ASD or a neurodiversity. It shows me that the spectrum is huge, and that its not an absolute outcome (which we all catastrophise).
I also follow a few accounts online - theres a women whose son is now in his 20s and his behaviour was very extreme as a child, and now he has such a lovely fulfilling life - he still needs support but he is happy, as is his mum.
Our autism therapist always corrects me and tells me to say 'DD cannot do this....YET.'

MumsyAm · 05/08/2024 12:58

Thanks for this. I think I know the account you mean- Toren I believe?! I try to do this too. Some days I feel like I can’t face it. I think if I had at least one NT child it would help me heal and accept better. Obviously that’s never a given!

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Cas1999 · 05/08/2024 14:04

Thinking of you🫂 I am struggling also with it all.... I feel overwhelmed and like a rabbit in the headlights a lot! So grateful I found this website to find our tribe! It helps so much to know we're not alone & can vent, share tips etc ❤️

Lostmum1906 · 05/08/2024 14:45

My bestie has 3 asd kids all born within 1.5 yrs of one another and were late diagnosed. All 3 are typically normal teenagers now, doing well at school happy and verbal and have friends!

ElizabethBennetsBoots · 05/08/2024 16:45

Now that he is understood and in the right school, my DS is a very happy and lovely boy. He can still be controlling and demanding, and likes everything just so and doesn't like change, but he will try new things and is very funny, charming, and pleasant. He's almost 9. The days of worrying about his speech and that he'd never talk or be able to regulate himself at all are slowly fading.

stripeswhite · 05/08/2024 18:59

MumsyAm · 05/08/2024 09:23

Positive autism stories?

I’m really struggling right now. I have a nearly 3 year old son who is autistic but yet to be diagnosed. He came on leaps and bounds with development in terms of his speech, understanding and he’s clever I feel. However he has zero patience, is very controlling and inflexible. He can have violent meltdowns.

I now have a five month old who is very clearly autistic. He barely makes eye contact, hardly ever smiles. He arches his back with feeding and generally and just moans and groans a lot. He’s always wanting picking up or cries. Lately he’s been screaming a lot.

I feel so depressed. I’ve tried to be neuroaffirmitive and positive but with how hard my eldest is and now the worries for my youngest boy too I just feel so overwhelmed with grief. I feel paralysed by fear now about my youngest.

Has anyone got any positive stories to tell?
I need some hope to hold on to.

I resonate a lot. Trying to find a tribe that understands. Happy to chat anytime x

Crystallizedring · 06/08/2024 22:37

It is very hard but I try to look for positives where I can. My DS can't talk (lots of other issues too and is clearly autistic) but he is happy and his smile and laugh are so cute and make my heart melt.
My DD who is also autistic is about to start college and when she was diagnosed at 8 we thought that would never be possible. She uses kickboxing to express her feelings. They both still have moments of meltdown but DDs are so much better now (shorter and less frequent) that I do have hope for DS.

MumsyAm · 07/08/2024 09:27

thanks for this. It’s so heartening to hear.

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