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SN children

Here are some suggested organisations that offer expert advice on special needs.

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Original poster

I know I am an unreasonable, whinging old cow, but...

41 replies

ManxMum · 13/04/2008 20:40

Please let me know your views.
case senario - 2 families, each with a special needs child.
Family one's child is in a wheelchair and, I suppose, has a mental age of approx 6 months. The child is quite small for age.
Family two's child IS NOT in a wheelchair, has a mental age of approx 18 months, but with the added problems of autism and is large for it's age.

Child one gets a ground floor extension, containing a bedroom and bathroom, complete with all necessary equipment built and financed by social services.

Child two gets nothing.

If child two couldn't walk, would they get the extra help? and who says that child two needs are so much less than child one?

All comments welcome.

OP posts:

Graciefer · 15/04/2008 13:10

I'm glad to note that I am not the only one who has had a trampoline in the living room.

I felt slightly mad having a large trampoline, net enclosure and all in front of the bay window, and the house certainly got some funny looks by passers by when DS1 was frantically bouncing away in there.

It is comforting to know, that others experience what we do and we are not crazy in always looking for solutions to new problems that crop up daily (like the radiator that took around 2 hours to refix to wall yesterday, thanks to the stupid blooming lathe and plaster walls, grrrrr).

Opps, DS1 has just arrived with the contents of my purse and handbook grasped in both hands, so better go fix that, before we take him swimming!

MannyMoeAndJack · 15/04/2008 13:20

It's actually frightening that so many families have to go cap in hand to get any sort of financial help, regardless of the type, or severity, of their child's disability. And don't get me started on obtaining respite care

Is it like this in other countries too? Anybody know?

yurt1 · 15/04/2008 16:23

just read the bit about lying graceifer [shock[ Email me and tell me more!!!

Davros · 15/04/2008 19:12

I was turned down for DFG and they were amazed that I even tried to apply as they just don't have any procedure to do so for someone who is not physically disabled. I wrote to Soc Svs etc but nothing happened and I can't be arsed to follow up.
I've had respite and DPs for some years but I don't consider that the same thing.

yurt1 · 15/04/2008 20:34

They were happy to process the DFG, they just offered a useless cheapskate 'solution' that wasn't fit for purpose (and took a year longer than they should have about it).

ouryve · 15/04/2008 23:18

I can see the need for a ground floor extension for the child with restricted mobility. Notsomuch for the child with autism.

ouryve · 15/04/2008 23:29

Is it like this in other countries too? Anybody know?

In the US, many people end up paying even for Speech and OT for their Autistic kids. Most states don;t even require medical insurance to cover autism.

Graciefer · 18/04/2008 10:22

Hi Yurt, hope the holiday went ok

Sorry for not emailing you yet, but haven't been about because of the school holidays and all.

Will definately e-mail in next few days.

yurt1 · 19/04/2008 12:07

ooooh update- the council have responded to the complaint and agreed we need double glazing We've already paid for a bunch ourselves but I'm hoping this means they will now fund the downstairs......

moondog · 19/04/2008 15:23

Oh that's heartening Yurt!

oiFoiF · 19/04/2008 20:05

thats really good yurt!

yurt1 · 19/04/2008 20:37

They' haven't delivered yet though (and I think they've forgotten that we live in a conservation area). Plus we've already forked out for half the work they've recommended as we couldn't wait any longer

yurt1 · 19/04/2008 21:22

oh and the other day I was slagging off SS then was introduced to the person standing behind me - head of children's services team

eidsvold · 19/04/2008 22:18

why should you feel awkward - if her department is doing crap - she needs to know about it Yurt.

yurt1 · 19/04/2008 22:22

He he, it dropped the person I was talking to in it a bit though (her funding comes from SS). I just said "ahhh I know your name'

Nat1H · 20/04/2008 07:29

In my experience, you have to fight tooth and nail for everything. I would imagine that child 1's parents have fought and fought for this. Maybe child 2's parents should try the same. Could you help them to put a case together?

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