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getting the statement can anyone help?

18 replies

ibiza1 · 09/04/2008 16:51

Hi there everyone can anyone give me some advice i am in the process of trying to get a statment for my daughter who is 4.
she has started therapy speech and occupational health, the pead is not going to diagnosis anything until after therapy.
we along with nursery know she will need help for p1, so i want her to go to s need school, she doesnt interact with other children in nursery just the teachers and she needs one on one attention, lots of other traits, but i have received a letter form the board asking if i want to include any info to them? i have already written a letter the the ed psychologist in your opinion what should i include?

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dustystar · 09/04/2008 16:57

Include everything you have concerns about. The more info you can provide (with examples if possible) the better.

ibiza1 · 09/04/2008 17:07

ok thanks i suppose there is no harm in writing too much?

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ancientmiddleagedmum · 09/04/2008 17:08

I could send you a copy of my submission ibiza? I can't email it though as I think I did it on my mum's computer. I basically put down the worst case scenario, and put why he is different from other kids and the problems he would have unaccompanied in class - eg understanding what's going on, hyperactivity, lack of language, possible health and safety issue to himself and others as he doesn't understand the danger from cars, water, electricity etc. Let me know here if you want a copy and I'll give you my email address as you won't want to put your address on here I don't think. As well as the written submission, I found that the Ed Psych assigned to assess your DD was crucial - if you can get her round to your way of thinking, you are more than half way there. I am a bit suspicious of a paed who won't diagnose till after therapy, beware they don't use a lack of diagnosis to deny you a statement. If you have money, a private diagnosis is an option and it lets you avoid this particular game the LEA play (no diagnosis, no statement).

dustystar · 09/04/2008 17:10

You can get a statement without a dx though. the LEA may try that one but its just one of their many tricks to avoid giving statements. DS has a statement with fulltime 1:1 support and he has no dx

daisy5678 · 09/04/2008 17:16

Yep, J was also statemented with no official dx, just vague EBD issues and possible ADHD. ADHD dx made no difference to Statement - ASD one did but I think they only used it to justify backing down actually!

I would send specific examples of why support is needed - "W needs X because Y. When/ if W didn't have X, Z would happen. To stop Z happening, X is essential for _ hours per week"

Oh good luck. The very word Statement makes me so angry that I have to go now - not a very positive experience for the last three years, though I have got there in the end - so I hope yours goes better.

moondog · 09/04/2008 17:17

Ibiza, it would be well worth you contacting your local Parent Partnership, Special Needs Advisory Group as this is precisely what they are there for.

Have you been given a leaflet about them? You should have done.If not,get onto the phone to local Edu. dept. and ask for it.

ibiza1 · 09/04/2008 17:23

ancientmiddleagedmum, yes that would be great i would appreciate that if u could?

the paed was the one that said to me she would need help at school, and the ed psychologist phoned me after receiving the letter i ahd written (pretty indepth) and she said us as parents r the ones in control so we will have final say on where she goes.

dont really have the funds for private but therapy only lasting until the end of may.

she has got a place in mainstream but her teacher at present has said she would not be able to cope and i defo dont think i could leave her as she is a lost wee soul in nursery as it is.

how do you find the 1 on 1 works, i am wary that it will make my daughter worse she has no friends she does not interact does seem aware of whats socially acceptable. infact u ask her how she is or how her day was you dont get an answer she gets her basic needs across but never answers me really.

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dustystar · 09/04/2008 17:26

The 1:1 support is there for whatever your child needs it for. For ds its to help him stay on task and keep calm maninly. Plus they also do work with him on socialisation and peer relationships etc.

ibiza1 · 09/04/2008 17:29

dustystar does ur ds have friends and is able to build friendship? does it cause any problems with other children asking why he has help or anything

i am concerned because i think she is an easy target to get bullied and if she has no idea what is socially acceptable i dont think she can go to mainstream at all. i think s n is the way to go as the unit near us has a max of 8 kids with 3 teachers?

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dustystar · 09/04/2008 17:34

He hasn't really been aware of having problems with friends until this year. He is very sociable but often misjudges social situations. Up until the last few months his peers were very tolerant of him but now they are getting older (he is 7) they get fed up with him sometimes. He is hyper though and very excitable which often spills over into aggression. I think his needs sound rather different to your dd's but as far as having the extra help the other children just accept it. Its never been a problem and he doesn't seem to be teased about it at all.

He is starting middle school in sept though so things may change with an older group of children. He did say he didn't want to have TAs at his new school but this morning he was talking about when he could get to meet them so he has accepted that he needs them.

ancientmiddleagedmum · 09/04/2008 17:40

Agree with the other posters points, but I'd also add that funnily enough having a 1-to-1 has almost helped my DS interract with other kids in his (nursery) class. The reason being that his 1 to 1 brings extra fun to the classroom (she is young, lively and pretty) and therefore the other kids see my DS as someone fun to hang out with. He pretty much doesn't interract at all, due to his autism, but his 1to1 is gradually gradually encouraging some games with other kids and the other day he had his first playdate. I'm sure things will change as he gets older, but at this stage kids accept that DS has a "helper" and they see her as fun! Sometimes they think she's his mum, but in general they get used to the fact that she's there because DS can't talk much. I'll CAT you my email if I may?

ancientmiddleagedmum · 09/04/2008 17:44

just tried to CAT you Ibiza but I think on the original sign-up page you entered, you have to tick the box about "are you happy for another mumsnetter to email or contact you?" . If you tick that then my message should come through to your email I think but I still can't see what your email is? Think that is right but haven't used this bit before!

ibiza1 · 09/04/2008 17:57

amam, ticked that so that might work for me now thanks i really appreciate it.
well dustystar my daughter is opposite as in she hardly speaks and is rarely hperactive she would be the opposite although she does get angry sometimes and gets very frustrated.

they have mentionned autism, but we will see

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ibiza1 · 09/04/2008 18:26

amam would u be able to send ur email through cat again please i tried to send mine to u but it wouldnt let me either

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ancientmiddleagedmum · 09/04/2008 20:04

I just sent it again Ibiza.

ibiza1 · 09/04/2008 20:47

amcm

not sure whats happening but nothing coming through to me for some reason?
do u have to go somewhere on mumsnet to pick up messages or should they just go through to email, i have checked mail nothing coming through.
thanks

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ancientmiddleagedmum · 10/04/2008 09:15

Ibiza, no I have nothing on my email either. can you send your email to [email protected] as that's a safe email which I can access but others can't?

ibiza1 · 10/04/2008 10:16

amam, sent it there so hopefully u will get it

thanks
x

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