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Understanding my daughter

4 replies

222a · 16/05/2024 21:01

I’m wondering if anyone could share their experiences, if their child/children are like my daughter. I’ve been worried about her from 9 months old where she never turned round at all when you called her name, so much so me and my husband had her hearing tested twice. She isn’t deaf or hard of hearing- hearing tests came back clear.

she was always a quiet content baby and never cried much, she smiled at you but always even now avoids eye contact, she never acknowledges other children and never played with them at nursery or playgroup either. Didn’t talk at all and said some words from the age of 2, we are under speech and language therapy and she talks a little bit now one word phrases, singing verses of songs repeatedly. If you ask her what some things are she will say sometimes what they are for example, hat, shoes, juice etc all one words though.

she’s now 3 and a half and she’s had assessments done at private nursery and her main stream nursery that states she has a development age of 6-11 month old baby. She’s extremely delayed. She goes into her own little world a lot of the time, has extreme meltdowns, still doesn’t turn around when you call her name, doesn’t listen to instruction, she’s still in nappies and doesn’t know how to dress herself.

I think I already know deep down, but I wanted to hear from other parents who experienced the same and if they had an outcome of an autism diagnosis?

we are currently on a very long waiting list for the neurological pathway team to assess my daughter for autism.

OP posts:
BrumToTheRescue · 16/05/2024 22:27

It may be autism, it may be something else, but it is brilliant you have got DD’s needs recognised and a referral in place.

As well as SALT while you are waiting for an autism assessment has DD been referred to OT? And physio if relevant? And if Portage work with preschool DC attending nursery in your area (they don’t in all areas) is DD under them?

Has an EHCNA been requested?

222a · 16/05/2024 22:31

She has just had her individual development plan from nursery completed last month, she’s not been referred to an OT, however I have an appointment with the doctor next week due to her behaviour at home- I’m hoping it will help me access more support for her.
If not autism what else could it be?

OP posts:
BrumToTheRescue · 17/05/2024 09:57

There are several other possibilities. One example is Global Developmental Delay (which is sometimes diagnosed as well as autism, but not always.)

OT can be included in DD’s IDP if it is needed. In case you aren’t aware of them, SNAP Cymru has lots of helpful information on their website.

222a · 17/05/2024 11:02

thank you @BrumToTheRescue

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