What do you make of this comment from DS2's paed.

[mymatemax]

DS2'S Paed phoned this morning to discuss yesterdays cock up (they sent me to the wrong clinic appnt so sat through the wrong appointment).
Anyway in conversation about ds2 she said,

"with DS'S CP we can confidently advise you as experts, its a physical condition & we know lots about it, with his ASD YOU are the expert & always will be, because its so individual to each person, YOU must tell me what you need & I will help you achieve it"

So is this the best advise ever, or a cop out, i've not decided yet!
She has said similar things in the past but not in such a direct way iykwim

Take her at her word and start asking her for things or to support you when you ask others for services etc. My Paed was great in that way, would always write a letter stating that he believed DS needed X or Y and happy to fill in or sign forms for DLA, Freedom Pass etc.

I'm with Davros - I'ld start compiling a wish list!

She is great with the DLA forms, normally phones me to talk through as she is filling them in.
If we ever need respite or when it comes to transfer to sn school, maybe I'll quote her.
Cheers Max
p.s What is a freedom pass?

So my new plan is,
I come on mn & find out what ds2 could/should get, what works what doesn't etc
and then I'll tell her whats needed, i'm loving the sound of this

I think she sounds great.
As a salt,always my view that parents know best.

Go for it with that wish list!

I think she's been reading Mumsnet! I've often seen complaints on here that doctors tend to assume they know everything about children on the strength of a half hour assessment, and ignore what the parents say. Lucky you, to find one that doesn't.

I don't know if Freedom Pass is a London-only thing (prob as Ken is always going on about it). It gives free travel on tubes, buses, trains, DLR etc to the elderly and/or disabled.

She is great normally, very direct & blunt but kicks arse when needed.

Davros I'm no longer a Londoner (well i am at heart) so guess ds2 won't qualify.

WEll, grab on to her and dont let go.

Doctors are realising that it is parents who need help, and if they get help earlier, they are able to cope without overrunning respite budgets etc and other budgets.

if they equipped us parents with what we need from the get go, we would be armed and more able to manage from a much earlier time.

could be though she is a doctor who believes in health empowerment. a rare breed, i know, but they do exist.

thank your lucky stars and dont look a gift horse in the mouth