I HATE sodding epilepsy

[2shoes]

dd has just come home with a note in her book. a boy in her small class had a fit yesterday9dd respite last night) and went into repiratory arrest. he is fine. but dd has just told me using her commun9ication book that she was scared it would happen to her.
have explained as best I could that she doesnt have that kind of epilepsy(fit free for about 18months) but I HATE it.

Oh 2shoes, sorry it's so hard for your DD and yourself.

Don't know anything about Epilepsy, but it sounds positive that she hasn't had a fit for that long.

I agree, with all the things wrong with my DD, epilepsy is the thing I most worry about. We have no control over how bad the seizure can be or how it will affect them.
Hope your DD isn't still worried.

poor DD, hope that you managed to reassure her.

I'm with you 2shoes. I hate dd1's epilepsy. Everything else I can deal with. I accept her learning disabilities, that is just who she is. But if I could take away her epilepsy I would do it in an instant, whatever it took.

so true
I totally have got my head round cp.
but when she got epilepsy I was so sad. I had prayed she wouldn't. DH has it and I thought 1 person in the house was enough.

[sigh] I hate it too. DD1 has turned blue a few times - it's a scary thing to see, and of course there's nothing you can do but pray the emergency meds take hold.

Hope she's feeling better about it now.

My son has Williams syndrome and that is a breeze compared to when he started having seizures and was dx with Infantile spasms. He has been sezire free for about 14 months now but those few months of seizures did so much damage.

I would give anything for my son never to have develpoed epilepsy but he did, and now I just hope that I never see another seizure.

2shoes, is it unusual for your dd to go as long as 18 months? I just ask because my sister used to have epilepsy and she outgrew it. It didn't just stop but the seizures gradually got further apart as she entered her teens and she had the last one when she was about 18 I think (she's 40 this year). We were told this happens quite a lot with people who develop epilepsy as children.
You can ignore me if I'm talking rubbish because I know nothing about your dd's diagnosis but thought I might offer a little ray of hope .