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Food issues

5 replies

Shakeitchillaaay · 15/02/2024 07:38

My son (6) has suspected ASD. He's having some issues with food at the moment and I'm not sure what to do about it. We've got him a doctor's appointment next week.

He became very fussy with food at around 2 years old. Since then, he's refused to try anything new and has short list of safe foods. Until recently, he'd only eat: lightly salted rice cakes, toast with butter, potato waffles, chips, blueberries/strawberries/raspberries/oranges, milk/white chocolate, a few types of biscuits, cream crackers/ritz crackers, salted pretzels, breadsticks, basically any flavour of crisps, vanilla ice cream, Barney bear cake, dry cornflakes and dry Rice Krispies. This is basically it. He will tolerate a few bites of a pancake and he used to eat brioche.

The problem we're having at the moment is that he's starting to refuse previously safe foods. We had different bread the other day (farmhouse white vs 'normal' white) and he said it smelled disgusting so now he won't eat toast. We were relying on toast with butter to get some dairy into him. Last night for dinner, he ate half a potato waffle. He said he was full because he ate a lot at lunch (not true - his lunchbox came home with only half the contents gone.) He refused rice cakes too which was something we were always able to give him, without fail.

It means we're running out of options for dinners - chips is the only thing left that's a "dinner" food.

His LSA says he's been really sensitive to smells lately and has refused to eat in the dinner hall because of the smell.

He was born prematurely and has always been small. When we've weighed him, he hasn't been underweight but he is very skinny. I'm worried he's not getting enough nourishment. We've tried gummy vitamins- he won't take them. We've tried liquid vitamins in his squash but he knows it's in there.

Does anyone have any advice? My friend sent me a really useful workbook that her daughter (who had ASD) got from the dietician but I'm trying to get as many tips as possible.

Thanks in advance.

OP posts:
CadyEastman · 15/02/2024 08:41

Have you come across the Birmingham Food Refusal Service yet OP? They might be able to help.

Is he feeling particularly overwhelmed at the moment? My DD is on the pathway and they think she has ARFID. She becomes particularly sensitive to smells when she's feeling overwhelmed.

CadyEastman · 15/02/2024 08:41

I should say more overwhelmed than usual.

Shakeitchillaaay · 15/02/2024 09:47

Thanks for the link, will take a look.

He's not exhibiting any other signs of feeling overwhelmed. He's actually far calmer than usual! It'd almost be easier if he was having meltdowns alongside the food issues as there'd be an obvious link there for me to explore but he's having a good week aside from the food.

OP posts:
SearchingForSolitude · 15/02/2024 10:30

I second looking at ARFID. If you can get a referral the Maudsley has a specialist ARFID service.

Has DS had a sensory OT assessment?

For now, keep offering the safe food.

GG1986 · 29/02/2024 17:18

When we have difficult periods with my daughters eating, we give paedisure chocolate shakes with milk. She just thinks it's a tasty milkshake. We also continue to offer whatever safe food she will take, it changes daily!

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