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Here are some suggested organisations that offer expert advice on special needs.

Ds is 4, and struggling with language and emotion

7 replies

estar · 16/03/2008 11:22

Hi there, sorry if there's already similar threads but thought I'd pick the brains of the fabulous ladies on here.

My ds is 4 and a twin, and I also have a 6yo and a 5mo, so obviously I'm quite busy. It was obvious about 12 months ago that ds was more than usually behind with his speech (before then I'd put it down to he was the quiet, mischevious twin, and his brother was the constant chatty and attention seeking one), but we were about to move house so I put off getting him assessed. Anyway, the move took months and months and then we had a new baby so not surprisingly, he didn't progress much in the meantime. His new pre-school has been good at trying to get the support he needs, but the waiting list in this area is 43 weeks (!!!!) for speech therapy, but which time he will have started school. He has just started being observed for a session a week at pre-school by a SENCO type person, but I hate all the waiting for a diagnosis of any kind - I just want to help him get on the right track!

So, he doesn't talk much, and when he tries we often can't understand what he says. If he is tired or grumpy he will revert to gesturing or pulling us to see whatever he wants to show us. He flips out quite regularly and can still have (thankfully short) tantrums like a 2yo. He hates sitting and doing what everyone else is doing and always kicks against the expected behaviour at pre-school, ie going to play when everyone is listening to a story, or reading a story when he's supposed to be painting. I don't think it can be ADHD because he can sit still for ages when he's absorbed in something - a favourite book, building with lego, TV, etc. He's bright and observant, and will work things out for himself and copy what he sees adults doing, and because he tends to ignore rules (which his brothers observe no problem) I often catch him trying to make his own breakfast, etc. He's very affectionate but very independant, and always wants everything on his terms. Some days are fine and he goes along with what his brothers do (although I do feel I'm less strict with him than the others because I want to avoid the inevitable explosions), other days every little thing (getting in the car, making him sit at the table) is hard work.

DH thinks he's just frustrated because of his delayed speech, and awkward because he wants to be but I want to make sure we're not missing something. He doesn't seem to 'fit' any of the labels iyswim.

Can anyone identify?

OP posts:
TotalChaos · 16/03/2008 11:30

If there's no hope of getting him seen any quicker, I would go private for SALT. An initial assessment/report and plan of work for you to do with him would cost £100/£150 with follow-up appointments about £50 per hour. I would also ask GP for referral to an ed psych and/or paediatrician to go on the list asap, to look at any support he might needs when he starts school.

What sort of level is his speech at? Does he speak in sentences? Does he have problems with pronunciation. Bear in mind he may have problems understanding what you and other people are saying - your description of how he copies what he sees others doing is quite classic of a child with language problems!

Useful websites:-
www.hanen.org
www.ican.org.uk
www.speechteach.co.uk

Also - Make sure he has a hearing test ASAP, as that could be a simple physical cause of speech etc problems.

Taliesintraction · 16/03/2008 11:30

Sounds very like one of mine.

NI twin clearly very inteligent but very much behind in his ability to use language and process things verbally.

Having a twin who is academically very bright only serves to underline the dificulties.

He has never had a diagnosis as there did not seem to be any recognised condition.

As I said school has been a struggle, but fighting like hell to get him a SSEN and a fantastic SENCO in the high school have eased things along for him.

magso · 16/03/2008 12:59

Agree with TC, if funds allow get a private salt assessment, with recommendations of what to work on. Be aware that getting help in school rarely happens without enormous parental effort, so keep reports and evidence in preparation. Good luck.

PipinJo · 16/03/2008 13:46

This reply has been deleted

Message withdrawn at poster's request.

magso · 16/03/2008 15:07

Pippin we had a similar experience. Salt assessed ds as not having enough language to qualify for salt - said he had to making 3 word sentances to qualify. We used home made pictures (I hadn't heard of pecs) and makaton signs. Private salt taught me how to do play style language therapy. Best money I ever spent!. Now at 8 DS is in MLD/asd school (last 6 monthss)and gets salt weekly plus teachers who follow salt advice, and its brilliant! Progress! And hes chatting like a busy preschooler!

TotalChaos · 16/03/2008 16:06

pipin and magso - and I thought NHS SALT availability was dreadful in Liverpool but it would appear that some areas are even worse served.

TotalChaos · 16/03/2008 16:09

estar - as a stop gap, if you have free time during the day I would recommend going to any Hanen courses put on locally - you probably won't be able to go on SALT one until your DS has been seen by SALT, but you may be able to access a You Make the Difference course put on by a nearby Surestart/Children's centre. Hanen are a Canadian organisation that specialise in helping kids with speech delay (www.hanen.org) and are very hot on fitting in ways to help your kids communicate in using day to day activities. The courses teach you how to help your kid with non-verbal and verbal communcation.

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