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ASD or just bad behaviour?

10 replies

Worriedmom2 · 29/10/2023 11:18

I have concerns over the behaviour of my 8 year old daughter and have for a few years, but hoped she’d grow out of some of it. It doesn’t seem to be happening though and she’s really tough to be around.
She is very head strong and stubborn, won’t be told and doesn’t seem to learn from past mistakes etc. For example, if you tell her not to do something like hold her drink upside down in case the lid comes off she will insist that it won’t and then inevitably it does and goes everywhere. She will then cry but will do the same thing next time around.

She is extremely fussy with food and will gag and spit out the most innocuous things ( on the rare occasions she will even try new things). She won’t even eat chips unless they are French fries etc. She is obsessed with snacking though and constantly claiming to be “starving” to get something. She goes so far as to sneak food if told no. I’m always finding wrappers hidden places, bowls shoved at the back of cupboards etc where she’s taken food she knows she shouldn’t. She will eat entire packets of things, steal her siblings treats etc not caring that it ends with her being told off. She will insist it wasn’t her if asked and then end up sobbing but again, she doesn’t learn and does the same thing next opportunity. I have to hide any snack items in strange places.

She also whines a lot, throws strops if everything doesn’t go her way or isn’t done immediately. Cries at the drop of a hat. She is extremely confident but doesn’t have many friends. She has one friend that she has made the centre of her world almost and will say that she doesn’t need any other friends. This inevitably ends with my daughter being alone when the other friend spends time with her other friends. However, I can see why she isn’t particularly liked by her peers as she can be quite rude, will tell kids that she is better than them at x y z.

She goes to a kids social club and I can tell the leader is desperate to get rid of her. If she deems the activity that day to be “boring” she just won’t join in and will sit there and do her own thing. This causes disruption as then other kids want to follow her lead etc.

Other points of concern are that she can be very fussy over clothes and things “ not feeling good” or just not being right. She can’t seem to sit/ stand still and has to be moving or fiddling constantly. Her room is always a mess, she loses and breaks things a lot.

She isn’t all bad and is very bright, extremely funny, great at singing and acting, can be kind ( if she gets sweets she will always make sure that her siblings get the same or will share hers. (Ironic since she will end up stealing them back if she eats hers faster!), can be sweet and sensitive at times. I just don’t know whether there is maybe something else going on with her or if she is just a difficult, maybe not always very nice child?

OP posts:
skkyelark · 29/10/2023 13:08

I think there's definitely enough there to warrant looking in to. What do school say? Are they giving her any support with the social side of things, and do they also see the unwillingness to do things she doesn't want to? Some children are expert maskers at school, so school may not see any of it, but if they do, that could help you get her referred for assessment and they could (and should) start putting in strategies to help her in the meantime.

If school are no help, I'd have a read of some lists on how autism presents in girls, make notes against the various criteria, and go to the GP. It might be worth posting your question in one of the special needs sections, a lot of the posters there are very knowledgeable and have been through the process.

SiouxsieSiouxStiletto · 29/10/2023 14:36

I agree with skyye entirely Flowers

Worriedmom2 · 30/10/2023 03:22

Thanks I will ask for my post to be moved.
Her school have never said anything just that she needs to focus more and fidget less.

OP posts:
YellowRosesWithRedTips · 30/10/2023 12:51

I think there is enough for you to pursue a referral for further assessment. In some areas you can self refer. If you can’t the GP or school will be able to. Have you spoken to the SENCO at school?

For the earring difficulties, have a look at ARFID. DD’s sensory differences will play a part in what is perceived as being ‘fussy’ and could also be part of the snacking, some find it difficult to know when they are full and when they are hungry. The clothing difficulties are also likely to be because of sensory difficulties. The book the out of sync child can help. OT can also help, but sensory OT isn’t commissioned on the NHS in all ICBs.

Have a look at PDA strategies. Some find Ross Greene’s book The Explosive Child helpful.

SalmonWellington · 30/10/2023 15:13

Explosive Child approach is sound.

Here's the thing - whether or not your DD is autistic the Tories have screwed over the country and the NHS so comprehensively that it'll be hard even to get her on a waiting list and if she gets on one she'll be waiting for years. Kids who are self-harming and years behind at school struggle to be seen.

You can go private - but it's expensive, not always recognised (or good) and there are waiting lists there too.

And if you get a diagnosis, it doesn't bring help with it, beyond the knowing. The knowing is important - people talk of realising they are Autistic, not broken neurotypicals. But it's not immediate help.

You could try a BIBIC assessment - again paid for. Doesn't diagnose, but gives you a sense of what your DDs needs might be.

The holy trinity of OT, SALT and EP reports can unlock support at school. Again, hard to get if you can't pay.

It is, as I said above, an absolute infuriating clusterfuck.

The one bright spot is that the techniques used for bringing up autistic kids - Ross Greene, Out of Sync Child and Beyond Behaviours are a good start - work for all kids. So it's worth trying them anyway.

openupmyeagereyes · 31/10/2023 05:24

Her school have never said anything just that she needs to focus more and fidget less.

Are they providing any support to help her with this, or just scolding her?

Like others have said, it’s definitely worth pursuing whether there’s any ND going on. In the meantime remember that she’s just a kid and doing the best she can - behaviour is communication. Your post sounds a bit negative towards her, which I appreciate may just be to get the difficulties across. Make sure you’re not comparing her unfavourably with siblings, being positive and not shaming her etc. The resources mentioned above are good.

Worriedmom2 · 31/10/2023 11:48

School don’t offer any support as I don’t believe they suspect anything is wrong. She is able to do the work just fine and doesn’t strop there the way she does at home.

If my post seems negative it’s because I’m trying to paint a picture of what behaviours give me cause for concern. A lot of it I had expected she would have started to grow out of by now but hasn’t. Also we are currently abroad and she has been particularly challenging this week.

OP posts:
YellowRosesWithRedTips · 31/10/2023 12:38

The ‘strops’ are more likely to be meltdowns. Just because DD doesn’t meltdown at school doesn’t mean the problem isn’t there. Have a look at the coke bottle effect.

The school must have seen difficulties. You say they have said she needs to focus more and fidget less. You say DD has friendship difficulties. The school should be providing support. Support is based on needs, not diagnosis. Have you spoken to the SENCO?

Worriedmom2 · 01/11/2023 11:20

School probably don’t see the friendship issues as DD does have friends, just not many. So she would be seen to be playing with other kids ( or one at least).

Nobody has ever raised the possibility of ASD with me, not from nursery or school or anywhere else. It’s just a suspicion I’ve had since realising that a lot of what we/ I thought were things she would grow out of don’t seem to be lessening. My DH has been adamant there’s nothing wrong and that she is just stubborn and headstrong. It’s only the past week that he’s started to admit that maybe there’s something going on.

Thanks for the book suggestions I will get them ordered.

OP posts:
YellowRosesWithRedTips · 01/11/2023 19:02

Speak to the SENCO at school. Unfortunately, you need to be the one leading the process.

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