Hello, first time posting on mumsnet, my daughter has recently been diagnosed with a rare brain condtion called Cerebellar hypoplasia, via mri, diagnosed at 2, and took a whole year for the diagnoses and waiting on appoiments ect. Symptoms was not being able to sit at 1, couldn't crawl untill nearly 2 and cannot walk or stand at all and been told she may never do so, the part of her brain is smaller that controls mobility and speech. Still awaiting genetic testing to find the cause and appoiments such as what support she'll get and need ect
She cannot walk or stand unaided at all, I have a 6 month old baby, so day to day can be a struggle. I wondered if there's any help out there? Is she to young for dla being only 2 and mobility isn't awarded untill 3? This I'd a life long disability, she also is being tested for autism on top of this. Tia x