can someone who knows more about pdd-nos or autism please offer me some help

[bubblagirl]

my ds as you all know has just been classed as atypical in his development has speech delay but poor understanding on the simple things

right i'll tell you how he is and someone please tell me what you think as seeing his child doctor tomorrow and if sounds like more than speech delay i want to raise concerns as i'm sick of waiting as a yr later still no SALT and playschool are getting concerened

he has no repetitive behaviour is is loving and keeps eye contact

to get his attention if his not doing something can be fine otherwise you have to actually move his face to yours as he just appears to not hear you

does not understand things such as what is your name but can follow instructions

at playschool can follow instructions but only if asked one to one otherwise doesnt seem to understand

speech is delayed and cannot pronounce words mainly start with a k or g so goat gog the guilder

knows his numbers and alphabet

has great concentration but a bit too good as doesnt notice anything else around him

i think ive been in denial as everyone keeps telling me theres nothing wrong with him his just a bit slower but begginning to realise as bright as he is physically at same level as peers but communication and understanding wise so far behind

i heard lady on here mention pdd-nos and never heard of it before but he seems to tock most boxes

i'm going to mention it anyway but just wandered if any body thinks my ds sounds like there dc and have they been diagnosed as i'm sick of being fobbed off i just want whats best for him so we can get him the help he needs to progress

thank you

he is so loving but i'm just noticing simple things such as say hello he doesnt get but knows bye whats your name he tends to jusdt copy questions instead of asking

could that just be the fact his learning speech or should he know how to answer he is 3 next month

my dp isnt off at all he is working 7 days a week at mo

he does give me time to myself though when he is off i get to go out with friends for a night at least twice a month we make sur eof it or i do sink really low

yeah guess what with dp on nights and ds not feeling well i have to much time to worry and think

how old is your ds you probably did ssay but brain like a sive my ds 3 end of nxt month totally adoreable although drivibg me mad with the whining thanks to lack of speech lol

bless him his not well though have to remind myself everytime the sound drives me insane lol

just going to have really lazy wekend dp at work so will try and do as much with ds as i can seem to be not doing much with him lately and leaving him to his own devises

made sure this morning we did some glueing and sticking and read abook so that was nice but when i feel down it end to want to be alone so need to snap myself out as a mum you cant afford to be down in the dump or ill

we are the glue holding everything together hoping ds will slepp soon then i really can have peace and quiet and read my magazines in peace

thanks again maybe we can help each other as going through saimilar thing

im glad you have supportive friends my friends genuinly dont seem to care they cut me off to talk about themselves

Hi Bubblagirl,

I just wanted to say that I was in a very similar place to you when my DD1 was your son's age. She was eventually diagnosed with PDD-NOS, but there was talk about autism/Apergers/symantic pragmatic disorder from her toddler days. We saw a paeds consultant from age two and then went to a specialist paeds assessment unit at age six. In the meantime, despite the fact that we had no firm diagnosis, we had excellent support in school and nursery.

If your fears about your son are confirmed, I just wanted to offer your my experience. My daughter at age eight is unrecognisable from the small child I worried about endlessly. She is still different from other children but she has found ways to cope with many of the challenges life throws at her. She attends Brownies, sings in a choir and does martial arts. She has made and kept friends and, frankly, she is great company. She can be odd sometimes, but then so can I! She came 'out of herself' much later than many children because of her speech problems but she is getting there. I can now have chats with her little sister aged two - I couldn't do that with DD1 for a very long time, which is sad.

Good luck with your DS. I know this is a confusing, worrying time but I hope things will work out for you in the end. The best advice I have been given re DD1 is to deal with current issues rather than anticipating troubles in the future which might never come to pass.

Patsy

thank you so much patsy your dd sounds like a really sweet girl i'm so glad she is able to do many things and has lots of friends i guess its one of my biggest fears

i do always worry about what he will or wont be able to do so i will have to learn to take one day at a time and handle each hurdle as it arrives

i have done too much worrying that i cant eat i feel like crying all the time and your right we havent got there yet so i will try and just get us where we need to be and deal with present

thank you it is nice to know someoen who has been there to offer words of wisdom as dealing with it on my own is getting me nowhere

xx

Glad it helped a little, BG.

I found it very hard to get my head around the fact that DD1 had problems. It can take time to adjust to the fact that the child you were expecting is a little different from the one you've got - especially if none of your friends/family are in the same boat. Have you spoken to anyone such as health visitor/GP etc about how down you are feeling?