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SN children

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Holding on to a sense of self

34 replies

Arabica · 05/03/2008 01:23

I used to post fairly regularly but I never seem to get time to go on the computer. I have DS, who's 6 and NT, and DD, who's 19 months and has global developmental delay. There's no overall diagnosis but according to our 14 health professionals she has moderate hearing loss (having operation for grommets soon); a squint; hypotonia (a bit floppy); severe speech and language delay; slow weight gain and, currently, a refusal to eat any solids at all save the occasional spoonful of yoghurt, bite of pizza.
I feel as though I've been plunged head-first into a whole new world. So many (dis)appointments, so many clinics, hospital cafes, bus rides that take forever, pages of medical notes. It's very isolating, frustrating and financially draining. And although my RL friends are supportive, none of them really 'get' what it's like to live in SN land. So I'm back! Am looking forward to meeting y'all again--and saying hi to anyone new.

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Arabica · 16/03/2008 23:30

Don't think about it! Too scary...

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oops · 19/03/2008 22:29

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Arabica · 20/03/2008 00:26

That's interesting oops! I would like to know more about your nephew. Maybe we could go to the interesting cafe again one day.

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motherinferior · 20/03/2008 20:50

Arabica! I've missed you.
xxxx

Arabica · 20/03/2008 22:53

You too!

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oops · 20/03/2008 23:05

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Arabica · 20/03/2008 23:11

Oops shall we see if any of the NE London mums would like to meet for a coffee? I know Bundle is free sometimes on a Monday.

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oops · 20/03/2008 23:18

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Arabica · 21/03/2008 15:11

I've started a meet-up thread suggesting Place on the Corner in Newington Green. I can do Mondays after I collect DD from Bath House (nursery) at 12, but on Mon 28 April she won't be going as her keyworker's on a course, so I'll be free anytime after 9.30.

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