Dh and Dd have same congenital condition. affects many parts of their body, skeleton, eyes lungs, heart, mobility affected. When they get a cold it is much worse than for the average Joe iyswim. They tire easily and must rest a lot.
When dd was little I worked bank and at weekends as there is no way she would have coped physically with child care. When she started school I started part time (18.5hrs) in a job that I had previously trained for pre child that involves my working with disabled children and their famillies, so where I am needed to be reliable, where people depend on me etc, where if I make mistakes the consequences could be dire.
Now dd is at a point where she can cope with some childcare so once a week she goes to an after school club, and I think that during the school hols she could go to a playscheme for maybe a day and half tops. Dh and I usually manage the rest of the childcare.
Anyway Dh now in hospital, has been for last week, looks set to have more heart surgery. This is out of the blue he had heart surgery last year and other major surgery too. Dd is illish (cold sore throat) so don't know if I can go into work tom.
I will have to take some more time off if he deff has heart surgery, I will need to juggle childcare, hospital, work etc.
I just feel like I am not going to be around enough for trhe people I am meant to be supporting.
Can't afford to give up work per se but wondering if I need to change jobs, although would likely be paid lot less than now. Any thoughts anyone?
i think my life experiences mean i bring a lot of understanding to my work, but what woudl you think if soemone meant to be supporting you/your child had to rearrange appts, had chunks of time off etc?