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Aspergers? Or something else?

7 replies

motherousity · 29/02/2008 19:44

HELP! Mothers with children with Aspergers! My 13 year old stepson was diagnosed with Aspergers as a small child. He is on Benedexadrene. For the past 2 years he has come to stay every other weekend. At first he was sweet,funny and just a joy. I am very concerned with some changing behavior patterns and some specific incidences. Over the years I have noticed chronic 'masterbation' in public. It's usually hands in his pockets and you know the rest. Once in a supermarket I turned and caught him with both hands in his pockets,bent over at the waist,face all twisted,"just give'n 'er" He carries a blanket around the house and fondles himself under the blanket. When you try to have a discussion around this he reacts strongly.Puts his hands over his ears and yells that he doesn't want to talk about it. He has a strong aversion to all boy/girl talk or sexuality.
The first time I met him was at his mothers. He wanted to show me his hamster. He brought him out and dispassionately dropped him onto the couch. I was horrified at the condition of the hamster. It had been mulled. It was unable to lift it's head or walk. It clearly had broken legs. I asked him what happened to his hamster. He told me coldly that "IT fell"
My boy is now 11. My stepson came to stay summer before last. One day I happened to look out the window. I saw my stepson with a large club like stick at the end of the drive taunting my son who was down near the house. He was jumping up and down, laughing wildly and then would run into the bush wanting my son to chase him. My blood ran cold. He was clearly aroused and was trying to lure my son into the woods for a beating. He was acting like it was all just fun and games. I could see that my son was as terrified as I was. I was about to go outside when his dad pulled in. I went out and said I had to go to the store. My son ran and jumped in my car. As we pulled out My stepson was squatting on the lawn glaring without blinking at my son. The look on his face was like Charles Manson.Wild and nuts.My son said,"Mom I think is trying to kill me." I tried to convince him that he was just playing but secretly I felt the same way.
My son collects swords(so does his father) and been taught that they aren't toys but collectors items for display. One day I came into the livingroon and was squatting again with all of the swords arranged around him in a circle. He had the sharpest dagger with both of his hands on the handle,tip in the carpet between his toes....with that MANSON look on his face. I think my knees buckled. I now hide all of the knives when he comes over.
He sneaks and tiptoes everywhere he goes in the house, he slithers along walls, anytime he has something in his hand he hides it at his side. He hides and eaves drops.CONSTANTLY. After he leaves I find that he has rifled thru every single item and possession and drawer that my son has,everything is taken apart and dismantled.I find that he has stolen food,I never see him do this,I just find all of the wrappers stuffed in the couch and under where he keeps his bag. The thing is he doesn't have to steal or sneak food. If he is hungry he just needs to get a snack...no problem.
I wake up in the middle of the night.2..3..4 o'clock in the morning and he is sitting BOLT upright in bed WIDE AWAKE.He looks like a terrified animal. He looks afraid and wild. It's eerie.
I found a home made poker under where he keeps his bag. When his dad asked him about he said he does remember making it,he doesn't remember why,and he does remember sneaking around the house with it hid'n at his side.
This last visit was too much. My 16 year old daughter had a collectors edition barbie. It was in my offfice for safe keeping. The boys wanted to go on my computer which is in my office. After he left I found her barbie dismembered..I mean hands poking out of where the eyes were..arms out the neck. Her torso with only arms to the elbows.
Anyways his parents attribute all of this and more(there isn't enought time to write it all)to Aspergers. He does have other classic Aspergers traits. Bouncing,flapping,
inability to interact socially,lack of empathy,literal-ness.I've read everything I can find on Aspergers and he does have it.There is SOME literature on Aspergers and malice that confirms my experience.But it seems that it's not politically correct to say that a child with a disability can be a dangerous.
The lying,the sneaking,the stealing,the malice are too much for my household. At first I said that he couldn't come back here unless he gets help.I have now said that he cannot come here at all. He needs help! As a co-parent I see many things that I think need addressing but his parents are in such denial. They won't even tell him that Santa isn't real. He is almost 14 and truly believes in Santa.
As I said there is literature some on Aspergers and malice.And when talking to family members of people with Aspergers and to a specialist my experience was confirmed. What are we going to do for him? Dope him up? Counselling? Rigid discipline? Help?
Either we get him help or his days as a member of my family are over. I will not risk the lives of my other children.

OP posts:
motherousity · 29/02/2008 20:14

I should add that my 16 year old daughter is a quadraplegic. With T4 spinabifida and profound CP. She has hydrocephalis and is blind. So As a parent I am well aware of the complications of having a child with disabilities. That is why I'd prefer to help rather than wash my hands of him.
Also when it comes to my daughter and * He is visably repulsed by her. He recoils from her. And treats her like she smells bad,makes faces like she is "gross" to him.I worry that if he ever plots to hurt someone it will be her. She is completely vulnarable. And it was HER barbie that he mamed.

OP posts:
motherousity · 29/02/2008 20:14

I should add that my 16 year old daughter is a quadraplegic. With T4 spinabifida and profound CP. She has hydrocephalis and is blind. So As a parent I am well aware of the complications of having a child with disabilities. That is why I'd prefer to help rather than wash my hands of him.
Also when it comes to my daughter and * He is visably repulsed by her. He recoils from her. And treats her like she smells bad,makes faces like she is "gross" to him.I worry that if he ever plots to hurt someone it will be her. She is completely vulnarable. And it was HER barbie that he mamed.

OP posts:
daisy5678 · 29/02/2008 21:05

Wow. I really feel for you. I don't know what to say except that I understand why you are concerned. I would probably ask your partner to work with the mother to make a CAMHS appointment/ check if the school has concerns.

It's hard for the parents because he is their son and denial is more comfortable.

It's hard for your partner because you're saying you won't have his son in the house.

But neither of them can complain if you are trying, constructively, to address (or to refer him to someone who will do so) his behaviour, or asking his parents to.

And I get why you need to, because it's doubly hard for you to watch all this and to be so afraid. Good luck.

motherousity · 01/03/2008 00:38

Thank you. The school does have concerns. He has been in alot of trouble lately. Apparently this isn't the first round of dangerous behavior with him. He was kicked out of preschool for attacking other children. It was so serious that he wasn't allowed back. It's always sudden. He clobbered my son in the head with a big brass ball.. suddenly..without provocation. Once he wanted to rough house...my son didn't want to. In the flash of a lightning bolt he has a wire hanger and was whipping my son...laughing...playing.

I feel a loss of the impish quirky child I met. I realise that he is in puberty and is changing. But he has become a Jekyl/Hyde.

I can see the hurt in my partners face. When we discuss * He said lastnight that he doesn't want to be "one of THOSE parents" who says,"We never saw it coming." if kills someone. Yet his first reaction to the barbie(as with most things) is that didn't do it. When my wallet went missing it coincided with one of visits. I suspected but didn't accuse. My partner found it under the back seat of his Jeep after he drove home yet says that maybe I left it there. I never go in the back seat. I have jewellery missing that coincides with * visits yet I have not accused him.I know that AS people "collect" not steal. I feel he should pay for the barbie to teach him responsibility. I would make my son pay for it.

I'm trying hard not to get too pushy about what I see as serious risks to ** health. His parents allow him adult caffeine drinks like Redbull...22% caffeine!! There are contraindications with benedexadrine and caffeine. He arrives with a duffle bag full of penny candy.Artificial flavours/colours,aspertine. He sneaks to eat these and only after he leaves do I find that he has squirreled away the wrappers. His Mom just says that she doesn't give it to him and doesn't know where he gets it.

Mostly I'm afraid for my kids. When he sits up all night. I'm afraid for my home. Is he terrified of the dark or his own thoughts?

It's come to the point where his parents apathy in getting him help is endangering my children.

Unless he gets help he WILL hurt or kill someone. Someone innocent and unsuspecting. How can just sit back and say that he isn't my child and my problem. I can't.

OP posts:
dgeorgea · 01/03/2008 10:22

Hi Motherousity,

There is a lot in your posts to address.

Masterbation is great stress reliever and is common in boy with autism, and known among girls. Though the parents and school should be teaching him when it is not appropriate to do it, ie in public.

I was very much like your stepson growing up, especially in regard with the underlying violence. I was kicked out of mainstream at 6 for attacking another child, and it was a vicious attack.

Most of the time it was sudden and in response to a perceived threat, real or not and was extreme. However I was just as capable of malicious thought and 'arranging things' so problems can be dealt with.

What scares me now is how close I got to seriously hurting or even killing others with no real concept of the consequences at the time. What changed me around was when one of my kids at school attacked me. I didn't get a chance to get back at him as the teachers were over us before I got a chance to. But once he realised what he had done and he hadn't killed me he had a complete nervous breakdown.

Despite everything else that I had done it was the thought that I could destroy someone like that shocked me to the core and made me realise I had to change.

Incidently, when not at home I would have a lot of trouble sleeping, and more often then not would sleep with a knife under my pillow.

There are some aspects of your story that realy does scare me. I am sure you are aware of the lack of empathy, and you have shown this with the story about the hamster. But also what it shows is his parents are sticking their head in the sand. They are not tackling his behaviour, he is being left without boundaries and that is frightening.

Assumedly the hamster had been suffering and they had allowed it to continue and without getting help for the hamster. The chances are depending on where he is on the spectrum for Aspergers he may have little or no concept that the hamster was suffering or he had done anything wrong.

Sorry to be harsh about this, but your husband has to take responsibility for this as well, even though he doesn't live with them. He is still the boys father. And from what you have said he would rather deny things then face up to them.

Having said that children like this can be very draining on parents. It is not as simple as telling the parents they need to be apply strong discipline consistantly. At this stage they need professional support and help. As you said he is 13, it is not going to change over night.

Oh and before someone declares what he needs is a good thrashing I was regularly caned at school and given the belt by my father.

I do agree with you that his diet needs a good looking at and his mum will need support with this.

You have to do what is best for your children and as things are currently I think you do need to rethink the current arrangements. A blanket ban on any rough housing, and I don't think that your husband is home when you have his son round is unreasonable - though I don't know your circumstances or your husbands work patterns.

If your son is becoming concerned about his own safety then this has to be taken seriously as this will effect him long term if not addressed.

I have a lot of sympathy for everyone involved, especially your stepson, as I said I was there once, but children like this drain everyone. As he is your husbands son he is a part of your life, but you need to take steps to reduce the effects on your family. If his parents continue to stick their head in the sand then your perfectly right to not want him near you and the family.

I haven't been able to find the drug you mentioned, but if this hasn't been recently assessed then it needs to be, but the parents need to be honest.

One plea though, don't give up on him totally. It took me many years after I decided to change to become comfortable with who I was, and what I had done. I was 15 when it happened. 17 before I was comfortable to throw the knife away. I walked out on a suprise 18th birthday because I couldn't cope with it. I had a few people who believed in me and stood by me, I was past my mid 20s before I truly appreciated them.

They weren't whimsical accepting what ever I did or try to excuse my behaviour, they tended to be the ones who stood up to me and set boundaries and made sure I faced the consequences. They were also the ones who maintained high expectations of me and helped me to pick myself up each time I failed.

It certainly wasn't the teacher who asked us to write about what we thought we would be doing by the time we were thirty and I wrote either dead or in prison for murder and he wrote I AGREE!

Sorry for the jumbled post but can see all sides of this, including the boys mother who I assume is dealing with him daily with little support?

But as I said at the end of the day your family is your main concern and there is little you can do if parents are not facing up to it.

(((hugs)))

Maribe · 01/03/2008 20:03

Not uncommon for kids with ASD to also have medtal health difficulties unfortunately. Also Aspergers can have some unusual presentations. Occasionally other conditions eg conduct disorder, bipolar disorder may be misdiagnosed as ASD but shouldn't happen if he has had a lengthy, thorough assessment by ASD specilaists.

Does your stepson have a CAHMS team, psychiatrist, paediatrician, SLT, OT anything like that? If not, maybe you need to push his parents for an urgent "review" i.e. referral to CAHMS team asap. It sounds like there would be a good chance of school support as there is likely to be some behaviour impacting on behaviour in school?

If you feel his parents are opposed to input it may be because they are used to protecting him and fighting for him. Maybe take the tack of "Isn't it terrible, here he is a teenager with changing needs, and no-one is looking at them!" So it isn't like a criticism of him.

Good luck with everything, sounds like a tough situation, hopefully you will all get the help needed.

Maribe · 01/03/2008 20:03

p.s. am SLT not mother of child with Asperger, sorry for butting in...

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