Haven't had the internet for a while due to house move and some annoying tag being left on the line preventing me going online!
Anyways i'm back online now and was wondering if anyone could possibly help me out.
DD1 has DiGeorge syndrome which affects her medically and has also caused her to have learning disabilities. She now attends full time SN school. She is going to be 4 in May.
I have suspected for a while she could be autistic although it's hard to say with her having learning diffuculties anyways through the DiGeorge syndrome, her language is starting to come on but it's at about an 18months to 2year olds development stage and there's a few things that strike me as being a bit different which are:
she can't pick a toy up and play with it she has to be shown how to play with it
she has a copy cat personality everything she does is mimiked she lacks an imagination
she has an absolute obsession and it really is an obsession with teletubbies. she has a laa laa doll that plays the same tune over and over again and has a revolving picture on it's tummy which she can play with non stop for until i finally take it off her. when she plays with this toy she has her hands in the air moving her fingers, this happens everytime
she does the hand in the air thing with moving her fingers and goes into her own world at other points about 30 times a day, we thought it could be seizures at one point and we're still waiting for results from an eeg but she snaps out of it when called for so i'm doubtful to it being seizures
she is very repetitive
she hates and goes into screaming panics from certain textures such as fluff, wet hair touching her arms and bubbles in the bath
she plays with herself and we have tried to get this addressed as to why she does this as she often does it in bed and when she's in the buggy but nobody can come up with the reason for this
she often looks distant and although she does smile and shows some expressions she does lack a lot of expressions
sometimes when i talk to her she hasn't got a clue what i'm on about and comes out with something completely different although she does lack language skills i still feel she hasn't got a clue what i'm telling her
if she pushes her younger sister over she doesn't understand whats she's done wrong and will often just look blankly at me when i tell her off
she hates large crowds of kids, she will scream and go into panics in situations with a lot of kids and noise. last time we went to a place where there were a lot of kids and she did this she picked up a girls dora bag and focused in on that and did the hands up in the air thing again and switched into her own world
she hates things being out of order for example she usually has breakfast then gets dressed as she's messy but if i ever switch it around she would then have to skip her breakfast and another example is she will spend hours just sat with a box of toys emptying it then putting it all away again
we are going to have a team around the child meeting soon and i will raise all my concerns fully this time.
the thing that's now puzzling me is that she can recognise her sister, her dad and me in photographs which is lovely to hear her say but everytime she sees herself in a photograph or mirror she calls herself dolly. is she beginning to get an imagination or could this be something else i should worry about? i do tell her it's her but she won't ever say her name it's always dolly and she has learnt to say her name.
i do feel like i worry about her a lot, i'm not sure whether i worry too much over nothing or what. but like now she's continuely opening and closing the door as i'm typing this which i'm going to have to stop in a minute as it's driving me mad i don't know whether she's doing it to be naughty or whether she just can't help but do it.
TIA