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Starting to baulk at referral

12 replies

SlugsNSnails · 25/02/2008 15:13

Flamechick has been normal all week. She started spontaneous imaginative play a few weeks ago, she gave me a huge cuddle and told me that I should go to sleep because I was tired (which strikes me as empathy, but I'm not too sure if mummy crying = tired as routine now ). She only clung to me for 5 mins or so when we went to see NappiesGalore.

I know that one good week vs 18 months or so of worrying is probably not a good indicator. I know that I need to keep the appointment whatever.

But I am sat here thinking that he is going to ask me what my worries are, then fire questions at me and I am just going to seem a nutter who is trying to force SN on my child when none are there.

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pagwatch · 25/02/2008 15:20

This whole area is so difficult to diagnose that only an idiot would have anything other than respect for a parent who is persuing their concerns.

And if DD is doing so well then surely you need a not a .

Wouldn't it be really nice if ultimately the appointment turns out to be a waste of time and Flamechick goes from strength to strength.

I expect you are just generally feeling anxious. I remember feeling like that around diagnosis - just wanting to know what was going on with DS.

deeeja · 25/02/2008 20:51

Oh yes, I feel like this all the time. When I went to see g.p for referral for my ds2(suspected asperger's), the gp remarked that ds was very chatty, and was 'only exploring' his office! Yes, I pointed out, he is 5 years old, but is going through your drawwers and things like a 2 year old. I have told him every five seconds to stop, and I have to keep on reminding him. Then ds went to see the clock and starting count-down music and watching the second hand, and got angry and shouted at gp for interrupting him. I was quite embarrassed, but I got referral in the end. That was ds on a good day because I managed to get him to the dr's surgery without meltdown, and we didn't have to wait too long.
Today ds has been mostly well behaved, except for an incident in the shopping centre when he shouted at a young lady for talking too loud!
He goes back to school tomorrow, that should be an interesting day!

SlugsNSnails · 25/02/2008 21:33

Thank you

DD's book bag was lost somewhere between class and after school club tonight - it was a hell of a battle getting her to leave the building without it. I know it shouldn't be that hard.

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monkeypie · 25/02/2008 21:54

SlugsNsnails i am so in that place too right now. DS is due assesment in April and everyday i see him do something knew and half of me is amazed and really chuffed and the other half of me is going 'OH MY GOD i am such a crap mum, how could i ever think there was something wrong'!
Next thing you know he does something which i know he shouldn't be doing at his age and i'm hitting my head on the wall again. I would so love to be wrong, let all the doubters be right and me have it wrong, more than anything!

SlugsNSnails · 26/02/2008 16:26

It's like some sort of weird split personality thing isn't it? How quickly you flick from "Nah, they're absolutely fine" to "My baby's broken"

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monkeypie · 26/02/2008 18:06

Yes and how you beat yourself up by thinking how rubbish you are for thinking they have a problem and when they do their 'thing' again you still feel down because you're sure you're right again.
SNS-What appointment is it you are waiting for?

SlugsNSnails · 26/02/2008 19:54

Exactly!

First referral to community paed w/r aspergers concerns.

DD is 4, I have been concerned from about 2yrs old I think.

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monkeypie · 26/02/2008 20:55

Do you have a date? Why has it taken so long to get sorted, is it that you have just come to terms that you should voice concerns? 2yrs is about same age as me, DS wasn't saying anywhere near the stuff he should have been, he just spook double dutch with the odd word(character from TV usually) thrown in. He had obsessions and other quirks but i didn't really worry too much about them. I was put off by friends taking my worries further, i have learnt to trust my instincts alot more since.

SlugsNSnails · 26/02/2008 21:08

The appointment is tomorrow afternoon

Your DS sounds very similar to my DD in that respect. My sister is AS (we think) and it is seeing her traits in DD that has made me act on it. Preschool said she was fine and normal when the HV spoke to them, so I left it until she started school I decided not to mention my worries to them, but then they changed her reading book without warning her, and she sobbed over the weekend. I realised that they needed to know then that she doesn't handle change without warning, and that if school needed to know that I had to press for a referral.

Saw GP in December, he sent off to community paed who we are seeing tomorrow

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monkeypie · 26/02/2008 21:34

Oh ok so not had to wait too long then. It took longer for them to pull their finger out for us. Then after seeing paed we will have hed to wait 5 months for the actual assessment, it's so wrong isn't it? 5 months to drive yourself nutty about what the outcome will be and worrying about the future but not being able to prepare for anything as you don't know what dx will be if any! Hope you manage to get things rolling sooner, that's if assessment is needed. Goodluck tomorrow and let us know how you get on.

SlugsNSnails · 27/02/2008 15:56

Update www.mumsnet.com/Talk/1373/486500?rnd=1204127688137 here]]

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SlugsNSnails · 27/02/2008 15:56

here

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