Asd 6 year old

[upstair123]

My son has just turned 6 years old. But he's is at a mainstream school. He is (very) minimal verbal and very hyper. We are convinced he had adhd but our area won't assess him until he's older. I have asked over and over.

He can just said more please, door key please but that's it. We are finally moving him to special school in September (been trying for 18 months). Has had a few transition days and he was hit by another student...

I am losing all hope with him. He is so hard work and I'm struggling. We have other children but he's spoils everything. I can't even collect other children from school as there is issues with special school finishing times and taxis. I just wanted to collect my other kids and feel like a normal mum for a little while. I have zero friends because of his needs and he couldn't care less about me.

Will it ever get easier or am I struck with him forever? I've lost hope he will talk to me. I don't think he can be bothered. I've tried not giving him things until he asks but he'll rather have nothing. All I want is for him to talk to me and calm down but with each birthday I know it will never happen.

When did your asd child start talking? He's potty trained and just takes himself to the toilet but can't talk.

Please speak to your GP/look at counselling.

For other DC, it is worth contacting your local young carers service and Sibs.

What support is DS receiving? SALT, OT etc.

Have you had social care assessments? A carer’s assessment for you and an assessment by the disabled children’s team for DS. If other DC are younger Home Start may be able to support you too.

We are receiving nothing! No SALT no OT. Nothing. He did receive 6 weeks of speak therapy when he was 3 but nothing since. No social worker. No help. Just us.

I had tried and tried to get anything but nothing happens. Even looked miles away.

I don't need help with other kids, just want to spend time with them but struck with asd son permanently.

Please speak you your GP.

SALT, OT and other therapies should be in the EHCP. You need to request an early review (IPSEA have a model letter you can use) in order to try to get it included. Unfortunately, the LA doesn’t have to agree to an early review and there is no right of appeal if they don’t. If that happens you will either have to wait until the annual review or request a reassessment of needs which does come with the right of appeal if refused. The EHCP sounds poor, you can improve it, but you may have to appeal.

You can request social care assessments - Contact have model letters you can use.

Young Carers and Sibs can help support your other DC. You may not need support with them, but they may well need support themselves. Home Start is a way of getting someone to support you all, but it is only available if DC are under 5, which is why I mentioned your other DC in relation to that.

we have had a fight for 18 months to get our son into a special school. We have had many early reviews for this. It does say SALT but we have had multiple case officers. Waiting for the draft copy, waiting for the final copy. Etc. Complete joke and nothing changes.

If SALT is detailed, specified and quantified in F (is it?) then it must be provided, and can be enforced if it isn’t, via judicial review if necessary. Having multiple case officers doesn’t change this.

If OT isn’t in there you should request an early review and appeal if necessary,

Unfortunately, DC whose parents knows the system and can advocate for them get better support. It shouldn’t be that way, but it is. Things can change and improve, but only if you force the matter.

Things will look very different in September. You will meet lots of parents in similar situations at events or groups.
Speech and Language therapy will probably happen in the school one to one and in small groups.

Staff will be very experienced and working on communication and interaction will be a focus throughout the day.
Sensory needs and any behavioural concerns will be taken into account when planning his learning.
You should feel supported and strategies will be shared. Usually a home school diary is well used to share information.

They will probably send symbols home to aid communication e.g. PECS or PODD
He may learn Signalong or Makaton. You might have access to training for these.
You shouldn’t need to fight for anything now that he is going into Special Education hopefully sounds like you have worked hard to get suitable provision.

At home is there anything he really enjoys doing that occupies him? Are there activities the others could join in with him? Blowing bubbles, turn taking rolling a ball or car, small trampoline?
Sounds like you need a break.