What if...?

[needmorecoffee]

Saw a prog last night on twins conjoined at the head and they were seperated in the US. Now, the seperation led to mild cerebral palsy as the motor cortex was damaged so the boys had daily intensive therapy to teach them to sit/walk etc etc. And they had specail brain scans that showed whether signals were going from the damaged motor cortex to the spinal cord.
What iff dd had had daily intensive therapy like that? Would she be able to sit or use her hands or even roll? I feel bad for her now that we didn't either do it ourselves (took me 6 months of phone calls to get any physio) or take her to some expensive place in the US.
We've never had any special scans neither to see how much of her motor cortex is actually functioning.
For some reason I feel a little tearful and jealous

((need)). unfortunately the US seems to be light years ahead with early intervention from what little I have read.

Oh NMC! (hands over hankie and cuppa).
You want the best and fight so hard for your dcs! (How is dd by the way, I hope she is home and recovered?) We can never know what might have been, only what may be, and that guides us to know what to fight for next! The US is light years ahead on early intervention as TC says at least in patches. and for those with good insurance!

((NMC)).

nmc its the "What ifs" isn't it.
In the US its the high profile cases & those with top dollar insurance that get that sort of intervention, the rest sadly get less support than here ^ adult services apparently are even worse.
A lady at sn group has chosen no therapy or intervention for her son with v severe quad CP, She says the DR's have painted such a bleak picture she just wants her son to be a child rather than be surrounded by therpaists etc. Not a route I'd risk but each to their own.
I wonder if more detailed scans etc showing function & glimmers of hope to build on would alter her mind.
At least with detailed scanning & tests we would know were best to concentrate therapaies.

but what if the scans showed that things were worse than you thought?

tbh I think there is no miracle cure.
you just have to learn to accept this is it.

Your right 2 shoes, never thought of that -always the optimist me!

I live in dread of dd needing another mri for that reason.

God I wish we had access to things like that sometimes. DS1 has just had some Botox and it's made such an amazing difference to his ability to move his legs that I've started to get all excited again about the possibility of him walking at some stage and really pushing the therapy. However I suspect that if I knew too much it might backfire on me and I'd either collapse in a heap and do nothing or push him too hard. You're so right 2shoes, you just have to learn to accept it, but I still struggle with that every day.