Hello,
I’m sorry this is long but I am so confused .. I’ve received the DLA letter to say my son is entitled to middle rate care as he needs help with bodily functions throughout the day which is true as he either has chronic constipation or loose movements but it’s also throughout the night (it doesn't magically stop).
My son is 2 and has a rare genetic condition, GDD, low muscle tone and hypermobility. He is also likely on the autism spectrum.
He cannot walk or talk.
The thing is I put way more detail on the forms (he’s 2) I explained he overstuffs his mouth with food until he is sick or chokes, that he wakes up in the night screaming at 2/3am and is awake until 7-10am and we have to get him out of the cot as he thrashes around and bring him downstairs where he needs to be supervised, I’ve explained he can’t dress himself like simple things such as putting his coat on or anything and becomes extremely distressed when we try and dress him and it can take up to an hour. I’ve explained he can have violent meltdown at home and when we’re out which results in him hurting himself and others and how he’s non verbal and has a limited understanding so is a danger to himself as he doesn’t understand no and don’t touch. (I put it in more information for the claim but just summarising here).
It’s like they’ve ignored all of that and only awarded it because he needs help with his bodily functions (which don’t magically stop at night).
I don’t know whether to do an MR or not - we were awarded middle rate care but I feel like it's just odd to award only on the bowel issues.