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Original poster

Where to go after referral rejected to cdc

10 replies

Tiredmum1223 · 19/05/2023 10:13

Hello, I was hoping I could get some advice on where to go next if my DD2 who is 3 years and 6months referral to the child development centre for possible autism gets rejected.

The HV came over last month and did the M-CHAT with me and my DD and she scored high on that meaning that she needed to be referred but the HV also wanted to observe her in her preschool. She did this last week and as my DD masks well as preschool the HV has said that it was like seeing a different child and that she thinks because of this the referral may get rejected. My DDs preschool is also going to write a report with evidence in the hope that that can counteract against what the HV saw while she was there for only 30 mins as my DDs preschool have also raised concerned about her.
There are quite a few red flags that have made me think of autism for my DD but I just want to be able to get her the help she needs now and not have to fight for it when she starts school.

Sorry for the long winded post but I suppose my question is, if it does get rejected where do I go from here? How can I get a referral for her? TIA x

OP posts:

ThomasWasTortured · 19/05/2023 10:31

If the referral is refused you could request it is relook at. Or ask for a referral elsewhere. Alternatively you could focus on collecting more evidence and then requesting another referral.

Good HCPs will be aware of masking and take that into account.

Original poster

Tiredmum1223 · 19/05/2023 10:48

Thank you so much for taking the time to reply. Thats really helpful to know that it can ask to have it relooked at. Collecting more evidence is also a good option to have more push behind it. Thank you again

OP posts:

DrMirandaBailey · 21/05/2023 15:23

I've been wondering this too. My DD's referral is currently being triaged and I'm quite nervous about it being rejected. I know she can be re-referred in time if needs be, however my HV even said she saw no point in waiting to refer given the long wait times.
How long have you been waiting to hear, OP? Our referral was made 8 weeks ago which I know isn't long, however apparently on this new referral route it's meant to be triaged and decided upon within 6 weeks

Original poster

Tiredmum1223 · 22/05/2023 20:41

@DrMirandaBailey Hello, thank you for messaging. My DD was referred 4/5 weeks ago, shes been referred to a Child Development Centre first where if they accept her referral then she'll have another assessment. Is this what has happened with your DD. How old is your DD? How have you found the process so far?

OP posts:

DrMirandaBailey · 22/05/2023 21:38

@Tiredmum1223 my DD is a few months younger than yours. She hasn't been observed in her childcare setting, just at home but the HV referred based on her observations then, my observations and a high score on the ASQ SE questionnaire.
She's been referred to the CDC too, I called two weeks ago and they said she is still at triage stage and to call back in a few weeks if we haven't heard, although my HV said if it's a rejected referral you usually hear back pretty quickly so I'm cautiously hopeful it'll be accepted. Did you ask for a copy of the referral? I did so I can see exactly what information got passed along which is helpful, although it doesn't cover all of my concerns.
I know it's a long road ahead and a diagnosis is likely a long way off but I assume you're the same in that I just want to get things moving as quickly as possible.

I must say, it's nice to speak to someone in the same boat though, so thank you for this thread

Original poster

Tiredmum1223 · 23/05/2023 09:29

It's so nice to speak to someone in the same situation and who understands as well. It's hard when there are people around you who don't understand or get it.

That's really good that they are just referring from the at home observation, its such a stressful time just waiting to find out and not being able tocolan what the next move is or anything. Is your DD in childcare?
I have asked for a copy but it hasn't been sent yet, I've had the part from my DDs childcare but they sent that to me directly so hopefully I'll get the rest soon. Thsts really interesting to know about usually hearing back sooner if it's rejected so I'll keep that in the back of my mind!

OP posts:

DrMirandaBailey · 23/05/2023 17:39

@Tiredmum1223 yes she is at a childminders. The CM doesn't share my concerns so I'm not sure if it's a case of masking or she is just very different at home and it's not actually ASD.... That's one of the main reasons I reached out for help so that I know how I'm supposed to respond to her

DrMirandaBailey · 16/06/2023 14:57

@Tiredmum1223 just wondering if you have heard back about your daughter's referral yet? I've chased numerous times but apparently the triage is taking a long time because of so many referrals

Original poster

Tiredmum1223 · 18/06/2023 21:32

Hello! I'm so sorry I've taken so long to reply. Yes, I'm so glad to say that my DD's referral to the CDC has been accepted. I called to find out and they explained that there is an 18 week wait until she will have another assessment at her preschool and then after that she'll have an assessment done at the CDC with a paediatrian and a Nurse too.
Sorry you're having to wait so long to find out about the referral. It's such a hard time waiting around and being in limbo. Where abouts are you, I know each area is different which is frustrating too!
How are you coping with everything with your DD? I'm finding it difficult to know how to deal with certain situations with her at the moment. X

OP posts:

DrMirandaBailey · 19/06/2023 09:40

@Tiredmum1223 oh I'm so glad it's been accepted! That must be a weight off your mind? 18 weeks doesn't seem too bad for a visit, hopefully they manage to stick to those times 🤞
I'm in Birmingham. A friend who's daughter has also been referred was told by a paediatrician there is a 27 month wait time for a full assessment, which in all honesty I'm ok with as I think it'll give us all time to see if her behaviours become more ingrained/ pronounced or if she will "grow out of them".

I really struggle with how to handle her behaviour too as if she is autistic/ has additional needs then I know the approach I take with my older DD isn't the right one for her, however I'm yet to find the "right" approach for her. I don't want to give in all of the time but equally when she's so distressed it seems cruel not to?

Does your DD struggle out of the house or does she seem to save everything for at home? Most of our families don't believe DD has any issues apart from being "very particular", it's only when they've stayed with us that they agree there's definitely more going on

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