gradually losing the plot

[mrskeanureeves]

...new here and like to introduce my family, and have a ramble, 4 kids , oldest one just flunked out of uni, and has after 3 torterus years has been diagnosed with bi polar. next in college, no probs other than typical teenager grumbling, no3 7 year old sweetheart, and last but no mean least the star of the family baby no4 who is 3. All girls! oh and hubby! Baby no4 has yet undiagnosed condition, numerous syptoms within the ballpark of sotos syndrome, awaiting genetic test results soon.
At the moment i am gradualy starting to lose the plot. Normally poor hubby would get the backlash, but i'm finding it increasingly hard to keep myself from verbally attacking ignorant and insensitive work collegues. I think, with coming to terms with babys dis, i am picking up on all the negetivity that people have towards disabled people in general.
Had to walk out last week or i would have swung a young man after he took the piss out of a lad with CP, angry with myself for not giving him a mouthful but even more enoyed and disapointed with manager as she had always been so supportive and nothing was said directly to him. Just a general everybody be abit more careful about what people say in the work place. Other collegue has the idea i have to take so many days off for appointments as extra long holiday!
Can't face it anymore but we need the money, thinking of changing job, but don.t think i get any better support else where. My manager Did't want to pull the official line with allowing me time off without pay because of babs dis but i think it' looks better on her targets. Not going in tomorrow , stuff them, then had 10 years work out of me and the happy pills are no longer making me happy, so off to the gp.
Dont' know what to do?
Anyone had any similar experience?
Or any kids out there with sotos?
Thanks for reading my ramblings
Mrs Reevesxx

Just wanted to say "Hi" Mrs Reeves.

My ds has Aspergers and currently we have a temp at work whose nephew has been dx with the same condition. It is "lovely" to hear her say that she only has to tell her nephew once what to do in a stern voice and he will do it yet her sister can't cope. She is forever giving me advice on what I should and should not do.

I love people like that.

Makes me feel a real crap parent and I know that I am not.

Welcome to Mumsnet by the way.

Thanks for your reply,
Yeah , i'm up to my neck in -advice-, like this, especially my oldest who has bi polar, she was branded as sploit, arrogant, and selfish just because she came across in public as a bright chatty girl , she is obviously ok really!
Reading some of the postings ,i thought i must have munchausens by proxy too!
mrsk

Hi there. My 4th child (also 3) has severe cerebral palsy and epilepsy. Know what you mean about disability issues. The ignorance out there is breath-taking.
Off to hozzie as dd went in yesterday with a 2 hour status seizures.

Thanks for your advice,might go part time first , and see how it goes, Cos i work for local goverment i can choose to take time off with out pay or voluntary reduce my hours. We,re going thorough a job review at the moment, so yeah i probabaly will take some time out til its resolved. DD gets dla and we probably won,t be that much worse off. But me and hubby have decided to withhold her a year before school and get her statemented.
I work with S/S and they are a nightmare. My first meeting with senoir officers i was crapping it , i was convinced i make a idiot of myself. And guess what , numpties that have budgets and no hold on the real world. Most of them are on empire building trips. Apologies to any of the hard working and caring s/s workers who have to work within these strict guidelines. Common sense doesn't seem to registar in most of the departments.
On a personal level, I remember it took 3 months and several tearful phone calls and one visit to the office to get an assessment. And guess what ? she has to be critical / highly disabled to met their criteria for help. In the end i gave up and it was stressing me out even more. She left me with a load of leaflets. Fabulous.
The best advice i,ve recieved is off sites like this and one doctor in Alder Hey, who looked me straight in the eye and told me remember you know your child better than anyone else and you have to fight for anything she may need in the furture ,if that means telling a professional they are wrong then don't be frightened keep on saying it til they listen.
All very deep but good to write this out. Thanks for your replies
Mrs r x

Hi NMC,
sorry you had a bad few days, how is little one, can't imagine how difficult it is for you and your family. Thanks for your reply
mrs kx