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My Brother's Story

26 replies

Rebi · 08/12/2004 12:14

I am not sure if what I write here will be of any use to anyone, but I have a need to share what has happened, so that hopefully someone somewhere will read it and get their child the help he/she needs. I do not wish to upset anyone, it is purely so that maybe someone will benefit from it. That is why I am posting it in the Special Needs Section, where I have had great advice in the past. Anyway I am rambling on and I’m sure not making much sense, so I suppose it is best to just begin.

My brother was murdered on the 8th September 2004. He was the victim of a bully who savagely stabbed him repeatedly in the back. As one newspaper’s headline read “Butchered in Knife Frenzy”. There were no defence wounds. He was 33 years old.

My brother had a difficult life. He never quite ‘fitted in’. He was labelled a ‘naughty boy’ from an early age. My parents tried and tried and tried to get help for him and never got it. He did get a diagnosis of dyslexia. He attended a school for kids who didn’t ‘fit in’ at one point (which he really liked) but other than that his schooling was a complete nightmare – he always attracted bullies in every shape and form. He was put on antidepressants at the age of eight.

I believe he suffered from ADHD and Aspergers. He had no diagnosis as a child. My own son has High Functioning Autism, and learning more about the condition, I so often saw and heard my brother described in the books I read and conferences I attended. My brother was born at a time when there was little help for children like him. My parents were told at one point it was because my Dad worked too much!

His adult life continued to be as traumatic for him as his childhood was. Occasionally he got involved in drink and drugs to numb the pain. He couldn’t hold down a job for more than a few months. He treated my parents so badly at times. He finally got ‘a’ diagnosis in his late 20s as having congenital schizophrenia. He had been receiving DLA for the last 3-4 years.

Being four years older than him, I always felt compelled to ‘look after him’ and ‘make things right’, but of course I (or anyone) couldn’t do that. As children he hated me bossing him about and we rowed constantly. But I loved him. My heart was broken so many times, seeing him in such pain. In the last 10 years I saw him less and less as I just couldn’t take any more pain – I had enough to deal with in my own life. That may sound very cruel to someone who hasn’t been in this position, but believe me there is only so much a person can take. My parents have had an awful time and I always wished I could protect them too. No matter what, they always had hope for him, they could never fully believe that the path my brother was on was not going to change. They so wanted him to have a happy life.

Anyway the reason for my writing this is to highlight what CAN happen if a child with ‘mild’ special needs does not get the help, support and understanding that he/she needs. We, as parents, must protect our children’s mental health. I have always tried to do this with my own son. I have seen the damage that can be caused. I was dogmatic about him not starting school in P1 without a classroom assistant. I will never allow them to take away that support without the fight of my life. He finds school hard enough without them taking away that crutch.

People have been shocked by what has happened to my brother. They have also been surprised by how my family have coped. We could see that the path he was on was dangerous, although we could never have envisaged this outcome. We have grieved for him so many times. He was an easy target. He was very very vulnerable – unable to learn by his mistakes. We could do nothing to protect him.

He was murdered in his own flat because a person was trying to steal his UB40 CD and my brother was trying to stop him. Another ‘person’ (and I use that term loosely) came up behind my brother and stabbed him several times in the back. Totally unprovoked. Totally unnecessary.

My poor poor brother. Noone can ever bully him again. He is now finally at peace.

OP posts:
gothicmama · 08/12/2004 12:16

{hugs}

TumbleflumpDancingBum · 08/12/2004 12:18

Rebi - thankyou for sharing, I'm sure this will help someone, and it has probably helped you by sharing your brothers story, so sad, so sorry..Sad {{{{hugs}}}}

hollybet · 08/12/2004 12:20

(((((((((((((((HUGS)))))))))))))))))

DoesntChristmasDragOn · 08/12/2004 12:21

:(

binkie · 08/12/2004 12:31

oh you poor darling, what a sad sad story. Thank you for being so brave as to tell it.

xxxxxxxxxxx

FlashingRudolphNose · 08/12/2004 12:31

Sad many hugs to you and your family

MariNativityPlay · 08/12/2004 12:33

Rebi, what a complete waste of a life. Your poor brother. I have friends with a young adult son with high-functioning AS and every time he leaves the house for his part-time job they must wonder if he is going to fall foul of some bullying nutter in the street.
Thinking of you.

ThomCatsAreNotJustForXmas · 08/12/2004 12:50

OMG Rebi, SO sorry to hear that. I'm so shocked and so sad for you. Thank you for sharing with us. May he indeed RIP. Thinking of you and your family. With love, Thomcat xx

SantaFio2 · 08/12/2004 12:53

Rebi :( how awful. How are you and your parents coping with the loss? You must be devastated. Although from your message you sound very together. You must always remember that you did everything you possibly could to help your brother, and you are right he is a peace now :( Have they arested the people responsible?

It must be an awful shock. Thank you for posting. i am of the school of thought that help should be sought for even the 'mildest' of problems. My nephew has got lots of learning problems and my sil and bil wont admit he has problems. he is almost 12 and cant ride a bike or kick or catch a ball, he lags at school and gets bullied. I really feel for the poor kid and I think my relatives ignorance does not help the situation. he had to have extra tuition last year and they treated it like something to be ashamed of.

amynSaintnixmum · 08/12/2004 12:54

Thats so sad RebiSad{{{{HUGS}}}}} to you and your family.xxx

throckenrobin · 08/12/2004 12:58

that is so sad Sad - and probably the person who killed him also had undiagnosed problems.

Rebi · 08/12/2004 15:05

Santafio I 100% agree that even for the mildest of problems help should be sought. That was my reason for posting my brother's story - I hope that just one person who doesn't understand the damage done to a child by not getting the understanding and support they need, might sit up and take note of the path it could lead to. Of course that doesn't apply to everyone, but just my experience.

We are a very ordinary middle class family and it is such a shock that a vicious crime should enter our world like this. If my brother had been treated better at school (eg when he was 5 my mum went to collect him early from school to bring him to the dentist, she found him sitting on the floor. The teacher's excuse was that he couldn't sit still at his desk. He was the only child sitting on the floor - as you can imagine this devestated my mother and she stood up for him. But what damage had been already been done by the teacher and how long would he have been kept on the floor? Hopefully this sort of thing could not happen today, but who knows?) maybe his self confidence wouldn't have been so badly eroded? It wasn't one single incident, but an accumulation of all the incidents put together.

My parents are completely devestated. At the moment my Dad is in a terrible way. His only son murdered in such a way and he couldn't protect him. None of us will ever be the same again. We still have the trial to face and have to see that 'person's face. Yep they caught him pretty much straight away and they had two witnesses. He has previous.

I do agree that he has his own problems. How could a sane person pick up a knife and stab another human being (who is not defending himself) repeatedly. Not that I think it excuses him any - he deserves to be locked away for ever as he is a danger to society.

Thank you for all your kind words.

OP posts:
SantaFio2 · 08/12/2004 15:27

I am so sorry Rebi :( Your parents must be totally devastated, especially if they always felt he was more vulnerable. The way in which he was killed was vicious and cruel and I dont think any family would ever get over that. I lost my sister not in the same circumstances but our family has never been the same since and never will be. But murder must make that greiving process even worse. The trial and facing that person will be horrendous for you but you will all be strong for your brother and want to see justice is done, however hard. i cant even begin to imagine what you all must be going through. Sorry i am most probably making things worse.

I am glad you posted Rebi because i think you are right. If some good comes out of this and you can make people aware of how much early intervention can help, then that is a positive thing. Sending you a big hug (((()))) it must have been very painful for you to post this and i am sure everyone appreciates that xxx

fairyfly · 08/12/2004 15:32

Reibi, what a horrid experience you have all been through, it is disgusting and so unfair it happened.
It is very kind of you to share your story, i understand why you have and you were very brave to do so, i understand nothing will ever bring your brother back but i sincerly wish you a peaceful future x

eefs · 08/12/2004 15:39

oh Rebi (((((hugs)))))
this has really touched a chord with me - my brother was diagnosed with severe dyslexia and AHDH as a child. This was after he'd been labeled as a bad kid and believed it too, even though he was the sweetest little boy. My parents did all they could - counselling, tutoring and sending him on special courses. He's very intelligent, a fact that was thrown at my parents time and time again as some sort of consolation prize when teachers would exclude him from different activites and hold him back a year or two. He too was bullied in school. He graduated but got pretty dismal grades, went to college but only lasted a few months. Since then he has drifted from job to job, never staying in one for more than a few months. He got a great personaltity and is a very hard worker but can never hack one place for too long. He drinks too much and does too many drugs. He has very few genuine friends, just those who use him for a while then move on when they've taken everything they can from him.

He feels like a failure - it makes me so sad that he learned to judge himself on other peoples standards. He's wonderful with my children, but I couldn't rely on him to turn up when he says. If he's in my house for an evening he'll drink his way through whatever I have in stock without realising it. He's still quite young but I fear for his future. What can we do though? There doesn't seem to be a solution.

sorry, didn't mean to go on, but your brother sounds a lot like mine. I'm sorry for you and your families loss. I hope time heals the pain so that you can remember him with a smile on your face.

mizmiz · 08/12/2004 15:45

Rebi, what a terrible terrible thing.
Sadly, I am not that surprised or shocked by what yoy say.
It has long been felt by all the salts that Iwork with that people with milder/less obvious forms of disabilities can have a much tougher time than those with more obvious ones such as Cerebral Palsy or Down's Syndrome or even severe Autism.

These people hover between two worlds-the 'normal' world and that of special needs often not quite fitting in either.
I have dealt with many young adults similar to your brother whose mental health was wrecked.
Another thing Ihave noticed is how much more poised, confident and happy kids with s/n are who go to special schools. At the beginning of my career I would have rather resigned than admit to preferring special schools, but 10 years of experience have led me to conclude that for many children, they are the best solution (partic. at secondary level) My line manager is interestedin doing a PhD looking at the mental health of kids with s/n who are in mainstream schools compared with those in secondary school.
This is one reason why I worry about this govt's zealous inclusion policy-not necessarily the answer.

God, this is going to sound gloomy for parents with children with things like Asopergers but its not meant to be-we know so much more now than we did when your brother was younger, and in the right setting these children will thrive and be happy. But, as I said, I know how it can be. Dealt with one v distressed family where the young son had a job in a supermarket and because (prior to me seeing him) they had zero support, the very shy father was constantly expected to come over and sort out the terrible arguments and outbursts that occured as a result of his son's Aspergers and various misunderstandings because of it. (That story has a happy ending BTW. The young man now lives with his g/friend and has a new job he loves with supportive colleagues.)

Can you and your parents gain comfort from knowing that this generation will not have to suffer like your brother's? Would involvement in a charity or conscience raising ease the heartache just a little?

God, I am so sorry. You have reminded me why Iam doing the job Ido and how important it is that NOONE falls through the net.

pixiefish · 08/12/2004 15:53

Rebi- so very very sorry for your loss- makes me remember why i went into teaching and why i always try to care and be nice even when the kids aren't being nice with me so Sad

Davrosthesnowman · 08/12/2004 17:11

Rebi, that is a very sad and tragic story, all my sympathy to you and your family.
I agree totally with you about even "mild" conditions needing support. My sister, who has Aspergers (there's no doubt) struggles with day-to-day life, has no friends, is often depressed and is basically an unhappy person. She basically isn't isn't bothered about other people and how they FEEL about her, but she does undertand and care about how they TREAT her, but that is part of the condition.
Whatever the underlying disability, condition or syndrome someone has, they also need to have their feelings considered and protected, even if they can't reciprocate. Some people mix this up with someone's mental health and emotional wellbeing CAUSING their disorder/dysfunction but that is absolutely not true, it is a totally different part of their problems altogether.

Chocol8 · 08/12/2004 18:46

Rebi, how brave you are. Your story made me cry and I went straight upstairs to hug my ds (ADHD/AS). Others will know that I have fought the school on the issues of bullying and am still fighting...but I will now constantly bear your post in mind.

To have written your brother's story so eloquently was so brave - thank you for sharing it with us all. (((hugs))).

JaysMumWantsaSilentNight · 08/12/2004 19:51

Rebi,

I commend you on our bravery, it must have been so very difficult for you to post about this tragic incident.
Both my husband and I cried when we read it, beacuse we have fought the same battles as your mother did in school.
We removed J from his mainstream school because he was being bullied, getting notes from other pupils telling him he was thick, stupid, a freak and a monster. My son kept running away from school - his head teacher threatened him that if he did it again he would remove his LSA support. When another child bullied my son, he collapsed on the playground floor and was rocking backwards and forwards and barking at anyone who went to close to him - the head teacher told my son that he was being silly and stupid.
My 8 year old son wrote a note to us with the help of his one and only friend, begging us to help him. He asked us how he could kill himself...no child should be reduced to this.

We have watched our son loose all of his self esteem - he has no real friends - even the one he does have encourages him to do things he shouldnt...J is just an easy target and will do what ever anyone tells him to do.

We are fighting the hardest battle of our lives to get our son assessed for ASD.

Your post has insilled in us the determination not to fail in securing J his diagnosis. With his diagnosis we will then get the right support and understanding for our son to go on and live his life.

I feel so much for you and your family and hope and pray that you will all be able to remember your dear brother with pride and deepest affection. May he be finally at rest.

Thank you for sharing this with us all...I think it has struck a chord with many people here...I know it has with us.

Thinking of you and your family....God Bless.

Eulalia · 08/12/2004 20:03

Rebi - how terribly sad. Thank you for sharing this with us. It will certainly help.

blossomgoodwill · 08/12/2004 20:12

((((hugs))))Sad Sad Sad
Rebi. How brave of you to come on here and tell your very sad story. Sending lots of love to you and your family at this very sad time. xxxxx

Saker · 08/12/2004 20:35

Rebi - that's a terrible story to have to tell - I'm so sorry that your family has had to suffer so much pain and frustration.

ladyrobinredbreast · 09/12/2004 10:10

Rebi so sorry for your tragic loss,how brave you are to share this with us your story has touched my heart.
Others on here know that i am still fighting the school on behalf of my son and will continue to fight that his condition be recognised and that he gets the care and support he needs (ADHD/AS)
I will always remember you post,thank you for sharing with us >

JakBFrostNippingatYourtoes · 09/12/2004 13:10

Rebi, that is so sad and so powerfully written. You obviously loved your brother very much. Your story really made me tearful. Sending lots of love, JB