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what if anything do you think is "wrong" with my son

8 replies

Sheruns · 05/04/2023 22:52

First of all please know that when I say "wrong" I see nothing negative about my son. He is quite simply the Best Human I've ever met but I think he needs some help. It's a long post but I don't want to drip feed so I'm going to include everything I can even if it might not be relevant.

Ds is 7. He's my second one. Twenty months younger than my first. His dad and I divorced when he was three. Completely amicable and he sees dad regularly. New partner now lives with us (no step children and no plans for additional children from New relationship). All good at home.

Because of his age, he lost final year I'd nursery and some of reception for covid. He was an incredibly placid baby but grew into a reasonably willful (not unusually so ) toddler. He found settling into school tricky and has never enjoyed learning in the formal sense of the word.

His year one teacher was a star and understood him really well. She broached the subject of possible asd or him being different. She talked about him being overly upset at what other children might find trivial. She also talked about some sensory issues eg being overly bothered by clothes labels tickling him.

He's bright and very articulate. He finished year one at greater depth for maths and reading but is a very reluctant writer. Now into year two they're getting very little work out of him and school say he seems unhappy and appears to have low self esteem. Academically he's gone from exceeding expectations to meeting them which I know is still good but it's not where you'd hope. He tells me he hates school. No bullying issues or friendship issues.

Outside of school he was in a football team but he lost interest when he felt that other kids were "mean" not passing to him etc.

At school he often says he can't do this, cries, rips or scribbles on his work. School have in place nurture group and Elsa. I'm a teacher and have always taught older children but I now teach the same age range (different school) and recognise he would stand out in my class as different. His teacher says he can't organise himself to get down to work and rolls around the classroom, makes silly noises and calls out.

He has a provision plan in place with targets to get down to work with his own choice of work place etc. The school asked me to contact gp re possible asd. Gp happened to have a son in same football team and had noticed and agreed to refer. In terms of asd "symptoms" he prefers to play alone at home and can fixate on interests for example he is obsessed with the Titanic. Will read about it, draw pictures of it, talk about it.

Recently it all came to a head when he got to school and took some scissors, tried to cut himself, and said he wants to die. School couldn't contact me immediately as I was at an interview so they rang camhs who said he needs to go to a and e despite not being physically hurt to get him into camhs system. I did this as soon as I got the message. The next day he had a camhs appointment and basically said he wants to die because there's no school in heaven. They discharged him on the basis school have nurture and Elsa in place and that he has paediatrician in two weeks for possible asd. School have a Semh referral in the pipe line.

At home he's happy. Likes to do his own thing and is a quirky out of the box thinker. He occasionally has what I'd describe as meltdowns if his brother has upset him (usual sibling stuff) he seems to struggle to regulate and "bring himself down" when he's angry. He's not physically aggressive but occasionally says he hates us hates his family etc. We tend to respond by saying well we love you very much and when you're feeling better we will play with you or talk etc but on the whole he is an ordinary, if a little quirky and a bit of a loner, at home.

I just want him to be happy and successful. If you've read this far, thank you

OP posts:
FloatingBean · 05/04/2023 23:02

I would push back on CAMHS, they need to be providing support. School level support isn’t enough.

School need to be providing more support than they are. Have you considered applying for an EHCNA? The benefit of that is if the LA agree to assess you can request assessments such as SALT, OT, psychiatrist, clinical psychologist. And if an EHCP is issued it can include ongoing therapies. If DS isn’t able to attend school, including because of his mental health, the LA must provide alternative arrangements.

In the meantime, as difficult as it is, I would ensure anything like scissors and knifes are locked away at home.

Sheruns · 05/04/2023 23:10

Thank you. Obviously sharp things are out of reach. I'm ashamed to say that even as a teacher I don't know what a lot of your abbreviations mean. Can you clarify? He's had a salt assessment and they said he has no sal issues. He's incredibly articulate and no word finding difficulties so they discharged him too.

It's difficult because I don't actually have any difficulty getting him to school. School has no breakfast club so I use am external company across the road from school which serves three local primaries. He loves the breakfast club and goes in happily. They then walk him across to school. He tends to go into school happily according to their staff (and on the rare occasions I've taken him eg if I've been on a course and been able to do school run). It's more just if something happens it feels to him like his day is ruined.

At the mo if he needs it they send him to his old year one teacher to complete his work with her. He loves her and works for her but it's a split site primary so once he's in year three he'll be across the road in a different building and won't have this option. I'm very worried about his transition into the "junior building"

OP posts:
Sheruns · 05/04/2023 23:15

Also i should say camhs are posting me info about applying for ehcp but my experience as a teacher is that he's nowhere near the threshold to get one. I know his situation sounds bad but I've taught children in much worse situations who have been rejected for ehcps

OP posts:
FloatingBean · 05/04/2023 23:26

EHCNA is an Education, Health and Care Needs Assessment
EHCP is an Education, Health and Care Plan
LA is local authority
OT is occupational therapy
SALT is speech and language therapy - this is about far more than the physical ability to speak. If ASD is suspected it is highly likely DS would benefit from SALT.

What is it about the Y1 teacher (or potentially Y1 classroom/set up) that meets DS’s needs when the Y2 teacher and set up doesn’t? Can the Y2 teacher adapt to be more like the Y1 teacher and classroom?

I think you should apply for an EHCNA. You may have to appeal, many do, but the threshold is relatively low - a) has or may have SEN, and b) may need SEN provision to be made via an EHCP. Anything else is unlawful. The vast majority of appeals are upheld. In my opinion DS meets the threshold. Do you have it in writing from CAMHS?

Sheruns · 05/04/2023 23:28

I don't have it in writing yet because they called me yesterday to say he was discharged but they said they'd post the same so it will be in writing any day when it arrives.

I didn't know about the ehcna so will ask about that next. That was the main one I wasn't sure of. Thank you.

OP posts:
Sheruns · 05/04/2023 23:30

And the current teacher and I tried to establish what it was about the year one class he coped with compared to year two that he isn't coping with and we were at a bit of a loss to be honest. Except the teacher herself who seemed to "get" him

OP posts:
FloatingBean · 05/04/2023 23:38

Some things to think about, don’t think you have to answer here. Is the Y1 classroom quieter, more structured, more sensory friendly (think about flooring/windows/layout/lighting)? Does Y1 have TA support whereas Y2 doesn’t?

Is the Y1 teacher more direct, structured in her communication? Does she rely less on non-verbal communication? Does she provide movement breaks? Is the work delivered in a different way? Is she more touchy-feely or the opposite (sensory needs)? Does DS use her to co-regulate and if so how? Does she provide more support? Does she respond differently to DS’s emotions?

Does the process of walking to Y1 provide the chance for DS to self regulate?

Follow up all verbal communication with an email. This builds a paper trail should you require it at a later date. If when the CAMHS letter arrives it doesn’t include the recommendations to apply for an EHCNA you should request that it is amended or confirm it via email.

Whysomanyfoxes · 08/04/2023 16:30

Hi @Sheruns your son sounds very like mine. We too know ours suffered greatly with missing end of preschool and much of reception class because of covid. It is a thing, don’t let anyone say it hasn’t affected them! We are on the long EHCNA road but have also got a privately funded Occupational Therapy assessment because we felt our son had sensory processing issues. He has, as well as dreadful anxiety. Having the results of this assessment has been very useful and given us an “oh I get it now” feeling. Also very helpful as a working document with school. I’m pleased we are “armed” with this information ready for transition into year 3 and juniors. He feels happier too now in school and I believe can see that they are helping him differently to before. Good luck, I know how you are feeling x

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