Just wondering if anyone had any advice or tips for certain things to really hone in on at this appointment.
Obviously we have submitted multiple reports from ourselves and other professionals but sometimes the discussion with the doctor is just as important as all the paperwork.
A little background:
So our boy is 4 and a half and since being little has been very advanced with milestones and developmental wise. He turned 20 months and everything changed, he stopped eating, his behaviour changed and his sleep went from bad to worse.
He became very sensory based and still is to this day. He only wears joggers and they have to be grey blue or black. He will not wear hoodies or jeans or anything like that. He refuses to wear coats so as you can imagine in the winter this was difficult. He became obsessed with numbers and letters and writing to the point he self taught to count to 100 and to write letters by the time he was 2.5. He became obsessed with a TV program and would watch it on repeat until he learnt the narratives etc.
His eating went from nearly everything to now bare minimum. He does not eat foods that are cooked apart from Chicken Poppers and this is all he has eaten for his tea for the past 2 years. He will eat the same pack up each day too. He flat out refuses to eat any other food. He does not eat bread products of any sort and he is obsessed with crisps. Like obsessed
His sleep has always been bad but he will wake up 5 to 6 tines a night, it takes him up to 2 hours to go to sleep and even then he will probably be through to our bed shortly after. He has to sleep with about 15 soft toys as well as his favourite proper toy at the time and they all have to be placed specifically in his bed and the quilt can't be touching them at all.
He struggles massively to self regulate and he goes 0 to 100 like a switch. He is a very angry little boy and has a lot of anxieties. He carries toys around with him all day at Nursery as he worries that if he puts them down someone will take them. To the point where he has often carried about 8 to 10 toys around with him for 6 hours straight and not done anything else to avoid the toys not being with him. He can't bare people sitting near him or touching him and any loud noises causes a lot of stress. He does not like being touched even for cuddles and kisses by family members. He gets very verbally abusive to others if any demand is put on him and he has started to lash out physically too. He is a perfectionist and if he does something wrong or makes a mistake he will repeatedly punch himself saying he hates himself and he's stupid.
It's almost like his intelligence is that of an 8 year old but he's stuck in a 4 year old body alongside the sensory and self regulation issues.
Sorry for waffling but I dont have anyone I feel understands. 🥺