Big worry weekend ( but not as bad as Yurt's)

[eidsvold]

Well had been having a good weekend getting caught up on things WHEN..

dd1 breaks a loose tooth in her mouth! Lots of blood, big hole!

No big deal except - she is a heartkid and before anything like dental work or surgery she has to have antibiotics to prevent infection in blood and heart trauma.

Bloody hell - fab gp on holidays - no one but hospital and GP know our history. So call cardiac hospital and get snippy receptionist who says she cannot let me speak to a doctor. 'I can't just let you speak to a doctor and have him sort out some medication for you' BUT you can come to A and E and see what will happen. Oh joy - like I need that with dd1 - not her cardiologist - have to tell history over and over.

So called children's hospital ( dd1 also outpatient there) where the doc said - bring her in ( there was some concern as someone had written that dd1 was allergic to a particular anitbiotic - the one she is meant to have when having pre surgery etc antibiotics) We will be waiting for her.

So we get there - they are expecting us - have her chart, have read through it - have come to the conclusion that the allergy is not right BUT they will give her a dose and monitor for an hour or so - no reaction - we can go home.

Well they were bloody brilliant - set her up in short stay ward - own portable dvd, dvd to watch, make herself at home. She thought that was cool. Me on tenterhooks after dose of antibiotics waiting to see if she goes into Anaphylactic shock.

Dd1 manages to score a yoghurt - some dinner and a drink - she thinks this is brilliant.

Finally get a script to cover her for a week and sent home.

Just need to make appt to see dentist now. Strangely it looks like her adult tooth may have been coming up to and hopefully it will move into the space left by the one that was pulled out.

Boy just a few stressful hours. Bloody furious at cardiac hospital. Dd1 has an alert card with that number on for when she is out of my care - people can call for clarification - she could become seriously ill due to some stupid person on the phone. Thankfully I am seeing dd1's cardiologist with an appt for dd2 on Friday - will be mentioning it to him.

I was so proud of dd1 though - she normally does not cope well with waiting and hanging around BUT being able to shut her off with curtains and have her own dvd on her bed made such a difference.

She did make me chuckle for a brief moment in my panic. The doc gave dd1 the stethoscope to have a listen and put it on dd1's chest, then put it over her own heart for dd1 to hear. That was not good enough for dd1 - she tries to lift the doc's shirt to hear properly - after all the doc did that to her! The doc was very good and put it under her own shirt and just chuckled.

oops sorry for big post Just needed to unload.

What a worrying day!
Was it one of the front teeth? Hope dd1 ok in the morning (I guess it is evening for you there).
Sounds like you brilliant had care in the end. Our localish kids unit is great I think we should have a season ticket we have sn boy (8 LD/asd), always in the wars, cant tell us much! Good luck with the trip to the dentist, I hope it needs no treatment!

we have an open pass for the Children's hospital with the consulatnt having written in big letters at the front of dd's file that he is to be called instantly whenever she goes in.
If we can actually get past the snippy receptionist the bloody nurses will not call him so I have to explain to some stupid 12 yo doctor that her seizures are not bog-standard ffs. And have him not belive me.
every farking time.

Oh gosh that sounds stressful. Far more than mine. I think I'm so used to windows going from headbuts now that it's barely stressed me tbh. last time I was in panic stations. I'm not going to fix it until I get paid next month, which avoids the stress of trying to get it fixed at half term.

Do complain - the receptionist sounds bloody awful.

oh god - I just had a panic thinking bloody hell I have given this number to special ed unit and primary school which tells them to call for information. At least I know what it is all about. I was not too panicky but thinking bloody hell woman - just put me through to someone.

Hopefully I can get a more direct number to pass on during appt on Friday.

Glad it worked out OK in the end eidsvold. Stupid receptionist. Grrr.

Re the prophylaxis thing - there are mutterings in the UK about changing it you know. The British Society of Antimicrobial Chemotherapy have decided that there is no benefit but the Cardiologists are up in arms and NICE are reviewing it all. In the meantime some dentists seem unwilling to prescribe.

Good luck for Fridays appy with dd2. Is that for something you're concerned about? We have cardio on Tuesday, I am attempting to keep my nerves in check. It ain't working

saggar - after dd2 was born dh was diagnose with a congenital heart defect ( at over 40 ) thankfully he had not dropped dead beforehand. It is something that can be managed with medication BUT will need therapy at some point in the future. Both dd2 and dd3 have a 1 in 50 chance of also having this defect and condition.

Strangely no link between dd1's heart defect and dh's - she has her heart defect because she has down syndrome NOT because of what dh has.

Unfortunately we have to wait until the dds are old enough to sit still for an ecg and echo etc to investigate it. So we are off on Friday to see whether dd2 has this or not.

Oh fingers crossed she gets the all-clear eidsvold. And sits still . We'll be starting on the joys of transition to adult services this visit.

sounds pretty stressful to me!

it is great your dd didn't find it too hard to deal with.

Good luck tomorrow Eidsvold.