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Best approach to concerns re my 2 year old son

9 replies

Corilee2806 · 23/02/2023 22:07

Please bear with me - I know he’s very young and the best thing at this age is to adopt a wait and see approach, but I’m looking for advice about whether I should do something now or leave him and wait.

He’s just turned 2, had his 2 year check on Monday and scored high on the ASQ social emotional scale, I’d asked for the check with HV a bit early as I had concerns - I’ve posted on here about him before in behaviour but not got a lot of answers.

HV’s overall sense from seeing him is that he is at the very challenging end of the spectrum in terms of toddler behaviour, and she could refer him now for further assessment or we could wait and see a few months more - he has just started nursery so things could change a lot in the coming months.

He is a very loving and happy boy when he has his own way, but if not he has the most explosive meltdowns I’ve ever seen. I reckon 10-20 a day. Not always that long, but they basically happen in response to every transition, morning til bedtime. We’re not very good at dealing with them and often give into him, but nothing we try seems to work - too young to reason and even distraction just annoys him. It’s eased off a bit but he sometimes hurts himself with head banging, bites and hits and pinches. These were some of the red flags in the questionnaire.

He very much wants one on one attention with an adult at all times - this is why I’m hoping nursery will help. He has an older sister (4) and I feel like I have to leave her to if half the time - he is all consuming and destructive! I have to plan my days around how he’s going to be and minimise transitions, if we have to go more than one place it’s just physically too much for me, the car seat and stroller battles are epic and being out and about can just be so embarrassing if he goes into a meltdown.

He sleeps ok although has just gone into a bed and is waking at 5 so is a bit more tired at the moment possibly.

Language is pretty good, not super advanced but I wouldn’t say delayed either - new words and simple sentences coming each week, not sure though if he’s where he’s be expected to be at 24 months.

I know he’s young but his behaviour around other children does concern me - he often seems scared of them and runs away or covers his eyes. Again hoping this will improve at nursery.

what should I do? Just monitor things for now and watch and wait over the next few months? I want to get the balance right of giving him a chance to develop the social and emotional regulation skills but equally, if this sounds worrying then I’d want to act sooner. I just worry about him all the time! And whatever the outcome is, for now I just need tools to try and deal with it better but no one seems to have any ideas. Hoping he will sound familiar to someone!

OP posts:
openupmyeagereyes · 24/02/2023 08:47

When you say he scored high on the S&E ASQ, do you mean over the threshold?

openupmyeagereyes · 24/02/2023 08:48

Have you tried the MCHAT?

Corilee2806 · 24/02/2023 09:01

Yes over the threshold - I think 65 or 70? I have tried the m-chat - did it a few months ago and he came out high then the other day it was medium - 6 I think? I wasn’t sure what age it could be used from?

OP posts:
Corilee2806 · 24/02/2023 09:02

One thing I wasn’t sure on was the pointing. I think he may have occasionally pointed out a plane but when he wants something he doesn’t point to it to ask me - he sort of pushes me towards it or tries to put my hand on it. Hard to tell!

OP posts:
JustKeepBuilding · 24/02/2023 09:05

If you have been offered a referral I would accept it. There’s a waiting list so if you accept a referral there will still be time for watchful waiting (in some areas potentially for a couple of years!). Then if you get to the top of the list but decide you no longer need it you haven’t lost anything.

openupmyeagereyes · 24/02/2023 09:10

Leading or manipulating your hand rather than asking is another red flag. Given the waiting times I would be pushing to get him on the waiting list for assessment, especially as HV is supportive. Ideally you want to find out if there’s anything going on before he starts school so you can get support in place and make appropriate decisions. If things have changed by then you can choose to withdraw.

Corilee2806 · 24/02/2023 09:16

Thanks for this - I think there’s just enough to tip the balance towards wanting to get the referral. Yes he’s had a lot going on lately but this has been going on for a while and there’s always been difficulties from when he was a very young baby - the same HV who came to see him then did his 2 year check so she knows him a bit. During the check he didn’t really want to know her and had several pretty big meltdowns, however did warm up towards the end and was very sweet and charming. Hence why she was a bit on the fence. I’m think as you say there’s nothing to lose by doing it given the wait times.

OP posts:
Corilee2806 · 24/02/2023 09:36

Also on the pointing - I think the distinction is he can point to something if you ask him to, but he won’t point to ask for what he wasn’t, more pushing and manipulating you towards things. Not sure if that’s important.

OP posts:
openupmyeagereyes · 24/02/2023 09:40

Whether he can point is not the issue. The important thing is whether he shares joint attention which is what typically developing children do. They point something out to you and look between you and the object to share the experience with you. Autistic children often don’t do this, at least when they are younger.

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