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Do.you think my 9 year old daughter could be masking her ASD?

5 replies

Blueflag22 · 26/12/2022 07:36

Diagnosed sensory issues, within 2 days of starting year 5 her teacher who is ex SEN teacher told me without knowing her SEN report as school lost of the he has his suspicions when I told him about her sensory issues diagnosis. She has friends and is quite popular, that throws me. She fidget a lot though, seems more shy with.adults, when on meltdowns, refuses to listen, refuses medicines, wears same stuff and it's getting worse days in a row, how it's old silky PJ of my mum's,brushing hair nightmare, brushing teeth has got worse, will not listen to dentists or doctors, has unbelievable meltdowns where I have to move things around the room, tells.Me not there here, when stressed or sick comes across rude, has mild anxiety, currently obsessed with Wednesday the character, imitates her, watches her, loves basically. good has to be separated, won't eat certain thing's but has no logic has say before she liked it, worse than my 2 boys both asd with clothes, during cold spell refuses to wrap up, refuses to dress appropriately. Had been sick since last week Tuesday and can't do what I m.doing again, has refused medicine, hardly drinking as she should, behaviour worse. Worth getting a diagnosis or not as we think she masks.

OP posts:
JustKeepBuilding · 26/12/2022 19:10

It certainly sounds like some form of neurodiversity is a possibility. Even if DD masks it is worth seeking an assessment. As DD gets older masking will take its toll and it becomes much more difficult as social expectations and demands increase.

Does DD receive OT support?

Blueflag22 · 26/12/2022 20:43

She doesn't has OT. I went private for sensory issues and she didn't suggest OT. she has been in her PJ for 5 says now. She has been unwell yes but she could change and wash if she wants to, it's completely overwhelmed her. It's like school finished and she is so exhausted. G P and hospital both said she has a viral thing but she is very tired. Not wanting to talk to her friends much etc. I think it's both the virus but also Her behaviour and refusal to even get dressed suggest possible burnout combined with being under the weather.

OP posts:
JustKeepBuilding · 26/12/2022 20:50

It sounds like DD needs a sensory OT assessment. Some areas commission this on the NHS, if your ICB does it’s worth getting a referral.

if she wants to

It probably isn’t a choice. It sounds like it is can’t rather than won’t. Can you support her to wash and change e.g. get everything ready, the right sensory environment in the bathroom, warm pyjamas (the ‘right’ ones if possible) when she gets out, even washing her if she needs it or supporting her step by step. And something to help her decompress afterwards.

Blueflag22 · 27/12/2022 08:39

JustKeepBuilding · 26/12/2022 20:50

It sounds like DD needs a sensory OT assessment. Some areas commission this on the NHS, if your ICB does it’s worth getting a referral.

if she wants to

It probably isn’t a choice. It sounds like it is can’t rather than won’t. Can you support her to wash and change e.g. get everything ready, the right sensory environment in the bathroom, warm pyjamas (the ‘right’ ones if possible) when she gets out, even washing her if she needs it or supporting her step by step. And something to help her decompress afterwards.

She refuses no matter what I've suggested. I am in a group for Autism.PDA and for girls they all sound similar. She definitely might need sensory OT.

OP posts:
JustKeepBuilding · 27/12/2022 09:07

If DD hasn’t been able to wash and change with what you have suggested, it suggests the approach isn’t right and needs altering so she can. Would DD change just her top, or sit covered by the quilt whilst you washed and dried the pyjamas or would she, as a first step, go into the bathroom once you have run the bath and dip her hand in with no pressure to get in. Have you looked at the PDA society and Yvonne Newbold’s resources?

Is DD receiving any MH support?

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