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Daughter really struggling with emotions

15 replies

Anothercupofteacanthurt · 29/11/2022 00:51

First time posting here, please be gentle!

Was initially surprised to be told by the school last year that they thought my daughter, then six, might be ‘on the spectrum’ (as they put it).

She is enthusiastic, social and communicative. Loves school. But there have always been some behaviours we’ve put down to her being quirky. Hates socks with seams, doesn’t give eye contact in photos, definitely likes to follow rules. Hard on herself when she makes mistakes.

Over lockdowns when she became frustrated over something, she would bite her hand hard (leaving toothmarks).

Recently that’s back. She loves spending time with other children –would be on constant playdates if we let her.

But when a playdate ended last week, she was devastated. Seeing me arrive it was like a switch was flicked, she was running and hiding and then hitting herself on the head.

Another playdate had to be cancelled because of illness and again we had a huge emotional reaction, almost devastation.

And at the end of an extra-curricular activity today (which I happened to stay for, and she was so happy the entire time), she suddenly told me she hated it, me and everything in the entire world.

It’s like she becomes a different girl, sad and angry. Until the storm passes (which is can do quite quickly) only to them possibly return again.

Last few weeks when cross she’s hit herself on the head in frustration.

She is very articulate but cannot seem to tell me what is happening to upset her. She did say that she’d rather not have fun than have the fun end. That she’s sad and angry but doesn’t know why.

It’s like a teenager suddenly overwhelmed, but she’s only seven.

Is this part of the ‘trouble with transitions’ that her teachers mentioned? Any books I can read that might offer some tips or advice? I just want to help her.

Thanks so much for reading all this!

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Thatsnotmycar · 29/11/2022 19:39

You could try warnings leading up to transitions, time, visual timetables, now and next board.

Yvonne Newbold’s resources and the explosive child book are worth looking at.

Are school providing any support?

Have you tried seamless/seamfree socks?

PritiPatelsMaker · 29/11/2022 20:23

She does sound very much like my DD at that age @Anothercupofteacanthurt.

How did the conversation go with the school. Did you agree to get her referred for assessment?

If she hadn't been referred already it might be worth asking them to refer her to Caudwell Children for assessment as it's much quicker and they provide support.

Anothercupofteacanthurt · 29/11/2022 21:07

Thanks so much for the replies. Yes @Thatsnotmycar seamfree socks and that problem solved. I’ll definitely look up Newbold.

@PritiPatelsMaker
Conversation with the school wasn’t great at first, to be honest. It was blurted out to us - we were shocked - and then we were not given many concrete examples of what the specific concerns were. I suspect they didn’t intend to mention it when they did.

They mentioned that she needs extra reassurance at the start of certain tasks / transitions between activities and lack of eye contact was noticed. She also asks a lot of questions (which she also does at home.) It’s reassurance seeking I think and she is definitely one of life’s worriers. Like her mum!

But she adores school, has tons of friends, is super social, excels at learning and no behaviours problems (or self injurious behaviour) at school at all. Can’t wait to get in there each morning (and she’s like that about everything). Which is why the news came as a shock.

But I’m determined to listen to any and all advice that might support her. So we agreed to a referral and the estimated wait time now around six months.

I’m happy to wait. At least then we can note any changes in behaviour to discuss those with them.

@PritiPatelsMaker Can I ask how old your daughter is now? And is there anything you wish you’d known about or done differently when she was 7?

Huge thanks again

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PritiPatelsMaker · 29/11/2022 21:41

Can I ask how old your daughter is now? And is there anything you wish you’d known about or done differently when she was 7?

Huge thanks again

Have a look at my thread about her going missing from school for two hours and walking 7 miles down an A road in the pouring rain. Sours not ideal right now unfortunately.

She seemed very similar to your DD at that age, loved school and her friends.

What I wish I'd known was that her speech delay, she was 3 before she started talking, her disturbed sleep and her fussy eating were all indications that there could be something more.

In your shoes I'd book an appointment with school again to discuss their observations and ask fir a referral for assessment. I'm not sure how long it would take but know that's it would be much quicker through Caudwell Children who I linked previously.

Thatsnotmycar · 29/11/2022 21:42

You could ask if the school offer anything like Zones of Regulation.

Anothercupofteacanthurt · 29/11/2022 22:22

Thank you. She’s been referred and the latest update is that she’ll be seen in around six months.

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Anothercupofteacanthurt · 29/11/2022 22:24

@Thatsnotmycar I will, thank you. Although she’s never had a meltdown (or any kind of problematic behaviour) at school.

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PritiPatelsMaker · 29/11/2022 23:39

Sorry for some reason I missed the bit that said that you'd agreed to the referral and it should take 6 months. Is that fir the initial appointment or the whole process of assessment?

PritiPatelsMaker · 30/11/2022 07:47

You could ask if the school offer anything like Zones of Regulation

I wish I'd found you years ago Thats. The Zones of Regulation sound exactly like the kind of thing that would have helped my DD at Primary School Flowers

Thatsnotmycar · 30/11/2022 09:20

With work and time the interventions at school such as Zones of Regulation can help at home too as DD will be able to begin using the strategies at home.

@PritiPatelsMaker Zones of Regulation can still help older DC/teens. Many years ago under another name I received support and advice from MN’ers I could never repay, now we are in a better place I like to try to give back.

Anothercupofteacanthurt · 30/11/2022 10:53

I’ll definitely look into it. Thanks again for all the advice

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Punxsutawney · 30/11/2022 11:25

PritiPatelsMaker. Ds's FE college use zones of regulation, so it can definitely benefit teens and young adults too.

PritiPatelsMaker · 01/12/2022 06:56

Thanks Punx & Thats I'll look at Zones of Regulation for home as well, that's really helpful.

And Thats, that is such a kind thing to do. You must have made a difference to so many families FlowersFlowersFlowers

LightTripper · 01/12/2022 10:13

My DD is autistic and it took me a long time to accept (because I had a totally warped idea of what autism was - partly due to ignorance, and partly because it turned out I was autistic too so nothing seemed odd or off to me that maybe would have done to an NT parent).

Here are some thoughts for resources that might be helpful in the meantime:

Maybe that's too much but when I first was told DD might be autistic I fell down an absolute rabbithole and not all of what I found was healthy/helpful. I wish I had found some of these things earlier in my journey (or, in many cases, that they had existed at all!)

Books for your daughter if you want to talk to her about it and whether she might be neurodivergent (ND is an umbrella term covering any kind of difference in neurological functioning - so autism, ADHD, dyslexia, dyspraxia, OCD, etc. etc.) These are ones my daughter loves (she's now 8 but really got into understanding her autism when she was 7 - didn't have much interest before that):

  • Abigail Balfe's "A Different Sort of Normal" (this is great for grown ups too as a kind of introduction to what autism is);
  • Fiction by Elle McNicoll (A Kind of Spark, Show us Who You Are, Like a Charm).

I don't know whether you have already talked to her about it - but if she is going for an assessment she is going to want to understand what it is all about, and these could be good introductions to help her understand neurodivergence in a positive way. Lizzie Huxley-Jones also has lots of (mostly own-voices) fiction recommendations here: lizziehuxleyjones.com/#autbooks

The waiting bit is really horrid but it's a good time to read up and develop your own understanding of what is happening with DD. Even if the experts determine that she is not autistic, she is showing behaviours that suggest she has some pretty overwhelming sensory and self-regulation issues, so whether she is autistic or not a lot of materials for autistic people and parents are going to be helpful for you and her.

Anothercupofteacanthurt · 05/12/2022 13:50

@LightTripper Thank you so much for your thoughtful and detailed reply. I am so grateful that you - and everyone who commented here - took the time to write all this!

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