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I can't believe that a nurse would believe such a horrible thing,never mind say it out loud.

27 replies

FuriousGeorge · 31/01/2008 14:07

As some of you may know,my uncle who as SN,including cerebal palsy,spina bifida & learning difficulties.He is also registered blind & deaf.

He has been in hospital for about 6 weeks now & the treatment he has,or rather hasn't recieved has horrified us.He is due to have a catheter removed today & my mum asked if he'd have an anaesthetic.The nurse answered that he probably would,but that 'They don't feel pain like we do,do they?'

Mum was shocked & confused & didn't know what to make of the comment,until she read his notes.The hospital have him down as having Downs Syndrome,which is incorrect,but when my mum told me,we realised why the nurse had said what she did.Apparently there used to be a belief that patients with DS didn't feel pain,but surely in this day an age,that isn't still taught.Or is it?

I am horrified at the thought that someone possibly wouldn't get pain relief,just because of their genetic make up.Can anyone tell me what we sghould do about this?We are going to make a complaint about my uncle's abysmal treatment anyway,but this has made us even angrier than we were before.Perhaps it explains why his treatment has been so,so poor.

OP posts:
salsmum · 05/02/2008 22:10

AnneMayersR
Unfortunatly some of the local hospitals and even a few of the London/city Hospitals don't really like parents staying, I suppose if it's a mixed ward the other patients may feel that their privacy is respected [even though i'm just looking after my child]Also I think that their are parents who will steal kettles/toasters/food etc...from the parents kitchen I like to think that these parents are the ones whos kids don't stay in hospital frequently [I know how frustrating it is to have a poorly equiped parents kitchen]I have slept on the floor, between cots and in a bedside chair to be there for my girl.
A carer friend recently stayed with her SN teen in Kings, he was put in mixed adult ward [he's 18] and was told if she must stay with her son can she please draw the curtains around????.
I'd gladly stay at your hospital [if needed].
You are right the majority of nurses do a brilliant job but with staff shortages etc..
they need as much GOOD parent help as possible. KEEP UP THE GOOD WORK X

salsmum · 05/02/2008 22:13

oops,
sorry that's supposed to read...other patients may feel their privacy ISN'T respected

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