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Here are some suggested organisations that offer expert advice on special needs.

Where to turn? ODD? ASD? HIJKLMNOP?!

2 replies

User1705612 · 14/11/2022 17:31

Two DC, one is very dyslexic, miles behind in reading but a pleasure, really helpful and willing to learn, doing extra work at home is usually pretty straight forward, their issue is so obvious to everyone that managing it has been straightforward,
DC2 is not diagnosed with anything yet other than a delay in motorskills, their work at school is at or above expected levels. I have told our GP I suspect autism but it was brushed off, he very much fits the bill for oppositional defiance disorder and it's so hard, he is the lovely but things can set him off, today we have been asked by the school for a charitable donation and he has taken it as a huge personal affront akin to us stealing from him to give to someone else. I'm following the 10 days to a less defiant child plan and I am seeing some improvement but it's so hard. I don't know where to turn for support, we are on the waiting list to see a private psychiatrist as I have no faith in the NHS.
I love my children and I know that in the grand scheme of things we are very lucky but every day is so difficult, I don't know where to turn. I just need a little pity party to feel sorry for myself for a bit, my husband is supportive but because of work is rarely home.

Thank you for listening if you got this far!

OP posts:
autumnleaves2000 · 17/11/2022 13:40

aww I'm so sorry you are feeling so stressed. Have tried speaking with the school senco? I would also perhaps request to speak to a different doctor if possible. I find different doctors give different opinions. You may get further help with someone else. Perhaps even your local council could give you some advise.

In regards to one of your DC being dyslexia, Dyslexia Gold is really good. My DS used it and it was very effective. I think they are changing to Literacy Gold. Perhaps its worth a look at.

ArrowNorth · 17/11/2022 23:17

Can you give examples of the behaviours and difficulties you believe match for an ODD profile?

Are you aware of the PDA profile of autism? Look at the PDA Society to rule that out.

Just mentioning it because PDA responds amazingly to a unique set of PDA strategies and you won't stumble on them through instinct or traditional parenting books.

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