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Hypotonia

6 replies

Badmm · 03/07/2022 14:41

My ds is 10 months old and at his 8 month developmental check by the health visitor she suggested he may have low muscle tone. He can’t sit, often throws himself back if I try, no crawling either and he also can become very stiff when I try to put him into sitting position but lifts his legs and refuses to bear weight. He is rolling now within the last month.

we are on waiting lists for referrals to physiotherapy and a paediatrician. I’ve been told these can take months.

im looking for any advice or exercises I can use to help and encourage him while we’re waiting to be seen.

Also if anyone else has a child with hypotonia do you know the cares ? I’ve been Googling and so many things come up 😫

OP posts:
Badmm · 03/07/2022 14:42

*cause not cares

OP posts:
Polly421 · 03/07/2022 18:17

My little boy who’s 21 months has been getting physio since January as he wasn’t sitting up and was referred to paediatrician due to this delay.He now is sitting up still struggles from time to time to stop himself from going over, to me we still need to work on his co-ordination as often forgets to put his hands down. We have seen massive improvement. I’ve attached the exercise plan he was given at first as this may help, I’ve cropped it at top as had physio details at top but this may help.

Hypotonia
Badmm · 03/07/2022 19:10

Thank you so much I’ll try these while I’m waiting x

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Polly421 · 03/07/2022 19:48

I have another page it’s more tummy time and being on side as my little boy still had poor head control so we had to focus on that first. The exercises have helped, we don’t have a definite cause but he’s been checked out a lot and we believe he may be autistic. We met with a neurologist couple of week back and he believes he’s no muscular disease but showing signs of being autistic as he’s got a few things going on not just sitting up. Plus my daughter is awaiting an autism assessment so neurologist thinks it’s linked.

Badmm · 03/07/2022 20:39

I try tummy time with my boy but he just rolls straight back over now he’s never really on his tummy long when he rolls either. My other 2 sons are actually awaiting an autism assessment but they both developed normally until school where it was social issues that started to show. This baby also has a different dad to my older two so I’m not sure if it could be autism or something else. The worst is online things like cerebral palsy it’s so worrying and such a long time for assessments my oldest has been on the wait list for autism for 3 years and still waiting x

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Polly421 · 03/07/2022 21:11

My little boy hates being on his tummy and physio came to realise this after a few weeks of working with him. It’s good he’s being referred to paediatrician. We had what they call here a joint assessment with paediatrician, paediatric nurse, physio and occupational therapist and they have been working with my son ever since. It was the nurse who mentioned during his assessment about my daughter being referred for autism as she is under her care also. So paediatrician did mention then it’s could be an early sign of autism but would focus on improving his gross motor skills and trying to rule out a cause of them. He’s had bloods all fine, we had appointment with neurologist who specialise in muscular problems and he said although his motor skills are delayed there not down to any muscular conditions. But his observations of my son and family history he would write back to paediatrician about sending him for autism assessment. Although hes young he noticed a lot of behaviours linked to autism. As he’s in his own little world he doesn’t talk very rarely babbles, doesn’t respond to his name and very poor eye contact and sat through the full appointment silent play with wheels on his car. He took car from him to see his reaction and my son didn’t like it all only time he was vocal. He asked me if I had spotted my son is very different not just in terms of delays in his gross motor skills and I said yes we have noticed more and more as he had got older. So when he mentioned to me about autism I wasn’t surprised. I have 3 older children and none of them had any issue with their gross motor skills sitting up etc the neurologist told me he will develop at his own pace and not to worry, he will walk as that was my concern. He said he gets impression when he’s on his feet he will be non stop as during appointment he didn’t want to sit still with the physio even though he has difficulties getting around safely.

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