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Here are some suggested organisations that offer expert advice on special needs.

Exhausted
9

purpleme12 · 16/05/2022 20:42

don't know how I can get through tomorrow.
My child's behaviour is so hard to deal with.
I have spoken to school to try get some help for her but it is not quick forthcoming even though I know it's in the system.
I can't do wrong for doing right.
Screaming all the time.
She wants help but pushes me away.
I can't win. Bit me really hard today. Hits me. Kicks me. Pushes me.
It's not fun anymore cos it takes up all my emotional energy to deal with a meltdown.
I don't know where I went wrong.
We used to have so much fun. I'm so miserable now


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AReallyUsefulEngine · 16/05/2022 21:34

Does DD have an EHCP? With SALT, OT, MH therapies? If not, you should apply. If she does you need to ask for an early review.

Have you had social care assessments? A carer’s assessment for you and an assessment via the disabled children’s team for DD.

Some parents find counselling helpful, do you think it would help you?

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purpleme12 · 16/05/2022 21:42

We have nothing because I spoke to school.
They have a meeting every so often with external people about whatever children need help and then the ball is set in motion. Which I know it has taken place however I have no idea when I will get this phone call from whichever external person offers help.

She is ok at school. I'm sure if she wasn't we'd get help quicker.

I don't know what to do anymore.
Sometimes I cuddle her and sing a song and it helps .

Today it lasted an hour and a half she would accept no help. It is a meltdown rather than a kicking off for an actual purpose. There seems to be no purpose to her screams, just that she's angry.

I never thought it would get like this

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AReallyUsefulEngine · 16/05/2022 21:45

Do you mean the school have applied for an EHCNA? Or is it Early Help?

You can ask for an EHCNA and social care assessments yourself.

In some areas you can self refer to OT, SALT, CAMHS so it’s worth seeing if you can.

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purpleme12 · 16/05/2022 21:48

I think it might be early help? I'm not sure but that's not been mentioned. It's a meeting with CAMHS and other people I can't remember what they said
But still nothing even though it's apparently been chased up. 😓

Honestly I've no idea what to do.

I feel so alone.

I feel like nothing I do works. She just hate me so much and I don't know what to do

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AReallyUsefulEngine · 16/05/2022 21:49

Is it a TAF?

I think you should apply for EHCNA and social care assessments yourself.

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purpleme12 · 16/05/2022 21:49

I wish she was behaving like it at school then people would understand and see what I'm talking about

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purpleme12 · 16/05/2022 21:53

AReallyUsefulEngine

Is it a TAF?

I think you should apply for EHCNA and social care assessments yourself.

I don't know.

What does ehcna mean and social care assessments? What do they involve? I'm scared

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purpleme12 · 16/05/2022 21:58

It's such a lot to deal with.
I thought I was an ok mum till this started.
I thought it was what I was good at.
But I can't stop this behaviour

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AReallyUsefulEngine · 16/05/2022 22:03

You don’t need to be scared. An EHCNA is the needs assessment prior to the LA deciding whether to issue an EHCP or not. It includes things like an Ed Psych assessment and can include SALT, OT, psychiatrist etc assessments.

Social care assessments are just that, assessments by social care. They will see what your/DD’s needs are and may lead to additional support e.g. direct payments.

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