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Fed up of the unreal world of being pre-diagnosis.(ASD)

53 replies

TotalChaos · 09/01/2008 19:31

DS is 3.10, has severely delayed speech and comprehension, and I think a diagnosis of HFA is on the cards. 10 months down the NHS line, and 18 months after I first became concerned, we've managed to have one inconclusive SALT appointment, and it's now uncertain whether he even will be seen by joint clinic (paed/ed psych). It's like la la land - officially, noone is showing any interest in offering any help or support - while the gulf between DS and his peers widens. I am so so troubled by worries about how he will cope in Reception in September. I have tried my best to quiz schools about their attitudes towards SN/speech problems, but I suppose I have little faith that the system locally will offer adequate support, given the little that has happened so far. Anyone got any advice about how to cope?

OP posts:
yurt1 · 16/01/2008 22:34

TC- they'll have forgotten. If they're school age. I'm always shocked when I watch videos of ds1 at 2 and 3 at how able he was. Seriously go with your gut....

aefondkiss · 16/01/2008 23:46

a lot of what you say about your ds on your post at 21:01:02 reminds me of my ds.

it is interesting to hear about OT, I haven't looked into it, but it sounds like it might be something worth considering...

I do wonder if my DS is a bit overly pandered to at nursery, but eek at them getting your ds to give them hugs, it does sound very friendly but why? what is the purpose? did they cuddle every child as they arrived?

moira199 · 17/01/2008 13:09

It is a tough decision to make - to decide whether to keep waiting and hoping or whether to push for another assessment hopefully to get a more definite answer.

When my DS was diagnosed , there was a list as long as my arm of all the 'typical ASD' symptoms that he did not have.
How does your DS compare with a group of typically developing children is probably a better way to ask the question than to ask 'How does he compare to the ASD child?'

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