Hi everyone, my son is 13 years old and has a diagnosis of ASD. He was diagnosed at eight years old after many years of assessment.
I first noticed that something was not right when my daughter was born and he hardly acknowledged her. He then progressed to treating her as a toy and would put pillows over her face. We went through a period where we have to put a sensor alarm in her bedroom so that we were aware when he would go in her room as he would often climb into her cot and then put blankets and pillows over her head. He would do this in the middle of the night. Really bad sleeper.
He also has significant language difficulties with expressive and receptive language. He has had quite challenging behaviour since a young age but now that he is getting older this is getting harder to manage. He is also going through puberty which adds to the complexity.
Some of these behaviours include the following:
- Getting angry after screen time and smashing phones/TV and windows in the house
- Getting angry if you misunderstand something/He misunderstands and again this results in smashing the house and hitting us. We try to leave him alone but he will keep coming after us trying to hit us
However, there are also challenging behaviours when he is happy such as:
- we have two dogs which he will hit I'll try and put them in the eye and pull their tails and we also have a cat which she does the same with. He has to be supervised around them constantly for their and his safety. When I ask him why he did it he smiles and say ' I don't know' or will say ' because it's not nice' (where he is obviously misunderstanding the question due to his language difficulties)
- Another puzzling behaviour we had the other day which was very different to anything else I'd ever experienced was that he smashed a TV in the spare room. He was not distressed and there was no clear trigger and he very calmly asked me 'why do we have a TV in the spare room?' When I told him it was just in case anybody wanted to use it he said 'I've just smashed it because we don't use it'. It was very matter-of-fact. We did have a discussion about it and he did say he was sorry. But I just find this behaviour so puzzling.
To give you an idea of his cognition he also asks me questions such as:
- ' Are you my son' so we discuss that I am his mum and he is my son
- He also asked his sister the other day if she was a boy or a girl?
- He also does not seem to understand that chewing batteries and spraying deodrant into his mouth is dangerous ( we have of course removed these risks and he does do it a lot less but needs to be supervised)
I am getting frustrated as everywhere I turn for help we are told that there is nothing available. I originally asked for respite as I feel we have good strategies but that sometimes it drains us but we were told its unavailable. I looked into paying for it myself but I got overwhelmed and felt it was just adding to my stress levels.
Following a recent incident were he smashed his bedroom window and was inconsolable I had to ring the police because my husband was out and I felt I could not ensure mine and his safety and was scared about the safety of us all. They came out and were very useful in expediting a referral to CAHMS and we also had a good support worker from the council who has been advocating for us (especially with CAHMs who have not been great and who I do not have much faith in). They have also said that they will look into respite for us.
The incident that led to smashing to window was because his sister asked him to remove his feet from her lap. Tbh though I did not handle the situation well because my dad has recently died and I was sorting out a lot, plus grieving so that definitely contributed to it.
I have read up on a lot of different approaches and we use a lot of approaches from the explosive trial book by Ross Green, social stories, visuals, timers, we communicate via drawings, we also use a lot of NVR techniques as a long time ago we worked out traditional techniques do not work and actually make the situation much worse. I also work in healthcare so I do know a lot of strategies.
I guess I'm just reaching out to see if anybody has any ideas or strategies that I could consider if they've been in a similar circumstances or know of anything. I am open to anything that I may not have thought of?
Thanks in advance, I know this is very long and I have hardly scratched the surface of our home life.