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SN children

Here are some suggested organisations that offer expert advice on special needs.

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Original poster

Jakbrown back from illness and computer wilderness!

24 replies

jakbrown · 20/11/2004 17:08

Just thought I'd say hello . Had hellish two weeks of illness (everybody, including DD with ear infection resistant to ALL antibiotics) and my computer being taken away in order to mend DH's 'cd burner'!! If I ever needed you lovely lot, it was the last two weeks. Also had visit to special school that had me in pieces. Anyway, lovely to be back. What's going on? Will read through threads later...

OP posts:

Socci · 20/11/2004 17:11

This reply has been deleted

Message withdrawn

coppertop · 20/11/2004 17:19

Welcome back, JB!

heartinthecountry · 20/11/2004 18:10

Hi Jakbrown - glad you are feeling better. What happened at the special school? Post when you have managed to catch up.

Chocol8 · 20/11/2004 18:26

Welcome back Jak - it must have been a nightmare losing your computer for 2 weeks! Glad you're all better now! x

Original poster

jakbrown · 20/11/2004 23:16

Ah, thanks you lot!

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merlot · 21/11/2004 18:03

Nice to hear from you again Jak.

about your dd's ear infection. ds2 has ear infection (again), so know where your coming from! What pain killers do you give? I find that Calpol doesn't seem to touch the pain iykwim.

Original poster

jakbrown · 21/11/2004 18:51

Merlot, oh it's a nightmare on the painkiller front. I ended up giving calpol and neurofen, which solved the pain problem but sent DD into a total spin (she really reacts to all the colours etc). But she was in agony. I did go through a phase of 'crushing up' the right dose of your standard painkillers but got too nervous about getting the dose wrong. DD's ear infection was so bad this time her ear actually smelled infected. The doc prescribed really strong antibiotics used to treat anthrax and lung infections which I didn't give DD. Ended up with another doc calling the microbiologist as really rare bug and she now has ear drops. Ear infections are a nightmare! Her ear is still in a right mess but she doesn't seem in pain anymore. Good luck Merlot!

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merlot · 21/11/2004 19:27

omg Jakbrown - that sounds awful . ds2's ear infection does now seem to be responding to Erythromycin (sp), so lets hope that its on its way out. Hope your dd continues to improve

Original poster

jakbrown · 21/11/2004 19:32

Thanks Merlot! They really set her back. She switches off for a couple of weeks each time she gets one. I'd been really positive as she's not had one for a while and I thought that a dairy free diet was helping. Definitely going to get her in with a homoeopath and a osteopath ASAP

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merlot · 22/11/2004 21:30

Good idea Jakbrown (just got to say here, aren't we getting good at this mumsnet bit - given that you and I discovered mumsnet at the same time, we've picked up the lingo pretty quickly haven't we )

Back to the post...

Has anyone mentioned Grommits? A couple of my friends have put the thought in my head because ds2 seems to have long term glue ear in his left ear and now with the winter etc.. we seem to have one ear infection after another. Don't think this can be helping the poor little chaps development one bit! I'd be interested to know your views

Original poster

jakbrown · 23/11/2004 09:45

Merlot, we have been down the grommits route. Infact, it was after we had grommits fitted and Dd was still not responding to her name/imitating etc that we got really worried. Has DS2 had his hearing checked?
Yes, we've picked it all up quickly haven't we?!!Anyone would think we are oldtimers!

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coppertop · 23/11/2004 09:49

Poor little dd, JB. I hope she feels better soon. xx

merlot · 23/11/2004 09:53

Hearing investigations are ongoing with ds2. Hearing specialist doesnt think that there are hearing problems, but cannot be categoric. Ds2 has one permanent glue ear, but because the other is ok and ds2 does respond to sound (although he does not babble)the specialist thinks that the cause of ds2's delay is not hearing. I think he is probably right, but think that if the glue ear is now causing problems re-infections etc. the grommit route might be worth that alone. Feel that if I mention Grommits with this particular specialist it is a dirty word iykwim. How old was your dd when she had the grommit/s fitted (and was it one or both ears?)

Original poster

jakbrown · 23/11/2004 10:16

Merlot, DD had grommits in both ears. The procedure was quick, although the whole general anaesthetic thing is upsetting when they're so little. I have to say, DD had just as many ear infections afterwards as before. Only difference was I'd know it was an ear infection quicker because her ear would discharge even if the eardrum wasn't perforated. In DD's case, the cause of her delay wasn't her hearing but we were all convinced it was for a long time.

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Thomcat · 23/11/2004 10:28

Hello jakbrown, nice to have you back.

Original poster

jakbrown · 23/11/2004 10:56

SO nice to be back, Thomcat!

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RnB · 23/11/2004 13:27

Message withdrawn

Original poster

jakbrown · 23/11/2004 13:29

And you, RnB! I could have kept on ordering those G&Ts!

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merlot · 23/11/2004 17:34

Thanks for the low down on grommits . How old was your dd when she had them inserted?

PS. Fancy a G & T myself if you are making them!

Original poster

jakbrown · 23/11/2004 19:23

Merlot, she was around 18 months. After a couple of months, we went back and I mentioned that she still wasn't imitating and didn't know her name etc... (totally not thinking autism at all at this point as thought she couldn't be as affectionate etc- believed all the cliches). He referred us to a developmental paed and that's when it all kicked off. Still took about another 10 months or so until we hit the jackpot (so to speak) and she was diagnosed. She is SO autistic! I still chuckle to myself when I think of all those months when I didn't realise...

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merlot · 23/11/2004 19:33

Thanks for this JakBrown. I just wanted to have an idea of what age they will `do' grommits. Ds2 will be 15 months soon and I think I might raise the grommit issue at the next hearing review in December (he's not pointing/immitating either, but no dx just yet, although atm they dont think he's autistic (I think they are looking for a syndrome, as he's gross motor development is also delayed). Still he is a beautiful boy and now quite cheeky with it

Original poster

jakbrown · 23/11/2004 19:41

Sorry, Merlot, didn't mean to rant on about my own story! Wasn't meaning to link your DS with autism (just read post back!), just off on my own story...

Yes, deffo raise it. I have heard they can work wonders.

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merlot · 23/11/2004 19:52

Dont be Jakbrown. Your post didn't imply that my ds2 is autistic. Its just that, you know how it is, when there is no dx - everything that you hear of you think, I wonder if? You just have a gut feeling, dont you, that things are not as they should be

I dont actually think that Grommits would make much of difference to ds2's overall development (because there is evidence of global delay), its just that the professionals cant exclude deafness once and for all whilst he's got glue ear (permanently present!) and as ds2's paternal aunt is partially deaf - this is something we definitely want to exclude iykwim

chonky · 23/11/2004 20:44

Good to have you back Jakbrown, I was wondering where you'd got to! Glad to hear that you're feeling better too

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