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Nearly 5 year old - where to start?

4 replies

ActonBell · 13/03/2022 23:03

DS1 will be 5 in May. He’s always been ‘full on’. Over the last year or so we have really struggled with his behaviour but we don’t know whether it’s our expectations that are out of line or whether he needs support with something. He has been through a lot in this period - I was very ill (emergency surgery), then pregnant with a high risk pregnancy. He started school in September. Obviously there’s the pandemic. He became a big brother at the end of the year and we all had covid in January.

He is struggling at school despite being very bright. His teacher says the main issue is that he doesn’t get the idea of rules as something that needs to apply to him. It’s not that he deliberately misbehaves much. It’s just he doesn’t seem to understand this aspect of how social interaction works - that sometimes you have to follow the rules/do what others are doing. So he repeatedly questions and tries to reason his way out of a situation and it happens over and over again with the same rules/circumstances. They explain to him why he can’t do something and the next day he’ll start the conversation all over again.

He has always been very strong willed and emotionally intense. He struggles with transitions from one place or activity to another.

He is extremely physically affectionate - a bit too much so at times. He hugs so hard he can hurt and can’t seem to grasp what the problem is with this. He seems to need to be touching me or his dad (or now his brother) all the time. He will engage strangers in conversation at the drop of a hat and would hug them if not prevented.

He also does slightly strange things that come and go like going through periods of licking me and his dad and random objects.

He’s ahead in most areas at school though he struggles with the physical act of writing. He seems to fall a lot though the way he leaps about all the time it’s hardly surprising. He is apparently well liked by other pupils but struggles to join in because he wants to be in control of the play that’s happening.

Today has been a tough day. I took him to an activity and he simply would not do what any of the other children were doing because it wasn’t what he wanted to do. He interrupted and argued and ran around. In the end we had to leave and I felt really upset.

I don’t know whether any of this merits any kind of investigation. If it does where do we start? School see him as having some difficulties but haven’t mentioned a formal assessment. Do we look for a counsellor or a psychologist or someone else?

Thank you!

OP posts:
Imitatingdory · 14/03/2022 10:22

I think there is enough in your posts to warrant investigating further assessments. Start by speaking to the SENCO at school and the GP.

Are the school providing any support?

MindfulBear · 16/03/2022 02:33

Speak to the Senco. Insist on referral for assessment.

OT was amazing.
The CAMHS psych report 6m later was a relief. Adhd.

However he was at the end of year 3 by this point. His self esteem was rock bottom and we were all exhausted. The swings in emotions were heart breaking. My spirited child was almost very broken.

I wish school had mentioned he was different earlier. Then he could have been supported earlier and perhaps his self esteem would not have been ruined.

So. Trust your parent instincts and go for it.

Good luck.

Whatafustercluck · 16/03/2022 15:29

Lots in here that reminds me of 5yo dd who we are now being supported with. She has done a great job of masking at school though, so it's only very recently that her teachers have become aware of friendship/ social interaction difficulties. Things were very obviously wrong when she got home, but not apparent during school times.

We didn't find the senco very helpful to be honest, precisely because dd was not exhibiting obvious difficulties at school. But we had an amazing family worker with both personal and professional experience of neurodiverse children, so that was our initial route.

In your case, given that school have highlighted some difficulties, I would definitely start the conversation there with the senco.

We also simultaneously pushed for a referral through our GP in the end, and really had to stand our ground to get them to treat us seriously. But when the referral finally got picked up, we've had fantastic engagement from the mental health support team in the first instance who have been providing advice on how to manage some of her more difficult behaviours, based on us understanding more about the causes of it.

ActonBell · 31/03/2022 09:10

Thank you for all the helpful responses. We’ve made some small changes at home to do with routine which seem to have helped but we also had a big moment last week when the leader of one of DS’s extracurricular activities outright asked whether we had a diagnosis. They have experience with sen children so to hear from someone else without prompting that they are seeing something was very difficult but also revealing for us.

Right now I just feel sad. It felt huge to have another adult ask that question. We’re trying to get the conversation going with school now.

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