I have some questions ...

staryeyed · 2008-01-03T12:58:11+00:00

1) My health visitor is on long term leave. She was a chocolate tea pot but we got used to each other. Now a new one has taken her place and she keeps leaving messages insisting I get in touch to arrange an appointment. I have tried to call several times but I can never get through to her, she left me with reception number which no one seems to answer. Anyway. I don't want an appointment. They are never useful and can not even manage to weigh/ measure him. Do I have to see them? 2) The paed also wants an appointment. I don't like her or want to see her I don't see the point. Its only been 3 months since the last appointment. Do I have to see her? 3) I am finally about to get an ABA programme running. We were getting some hours of intervention from our borough but it's rubbish. I was hanging on because of access to music therapy and sn play group but now my Ds can no longer access them. I told them that we will start part time ABA soon and they say they can no longer work with us. Im not bothered because it is so rubbish but is it correct that a service can be taken away because you pay privately for another?

4 replies

staryeyed · 03/01/2008 12:58

My health visitor is on long term leave. She was a chocolate tea pot but we got used to each other. Now a new one has taken her place and she keeps leaving messages insisting I get in touch to arrange an appointment. I have tried to call several times but I can never get through to her, she left me with reception number which no one seems to answer. Anyway. I don't want an appointment. They are never useful and can not even manage to weigh/ measure him. Do I have to see them?
The paed also wants an appointment. I don't like her or want to see her I don't see the point. Its only been 3 months since the last appointment. Do I have to see her?
I am finally about to get an ABA programme running. We were getting some hours of intervention from our borough but it's rubbish. I was hanging on because of access to music therapy and sn play group but now my Ds can no longer access them. I told them that we will start part time ABA soon and they say they can no longer work with us. Im not bothered because it is so rubbish but is it correct that a service can be taken away because you pay privately for another?

OP posts:

needmorecoffee · 03/01/2008 14:54

No you don't. I avoid mine although now dd needs free nappies I have rang her. She knows bugger all about cerebral palsy.
Nope again. You are in charge.
No it shouldn't. If you are assessed as needing something then you should get it, regardless of what you are doing privately.

Original poster

staryeyed · 03/01/2008 15:03

Thanks NMC. I thought that was the case. Id read something similar regarding private stuff.

OP posts:

nuttynoel · 03/01/2008 15:21

DS is 13 now and I still get letters/phone calls every six months asking me to get in touch. Haven't been anywhere near them about him since he was 1. No thank you.
We see the paeds once a year, with the proviso that they're only an email away.
I feel once you have a diagnosis and anything acute is being dealt with, and your physio etc is into a routine, it's best to back off for a while from all these specialists and just concentrate on living/loving your child. I was plunged into the depths on countless occasions by this one and that one putting their twopenneth in and eventually just decided to get on with it myself and see what happened.

aquariusmum · 03/01/2008 16:46

You certainly shouldn't lose stuff just because are doing ABA - I have just had 6 NHS OT appointments (after a 3 year waiting list) and they did not take them off me judy because I have chosen to pay for ABA privately (by remortgaging the house!)

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