The good news: The physiotherapist is getting me onto a swimming class for SN children, where there's one little boy roughly the same age as ds who has a similar condition. Really looking forward to meeting him, his mother and other parents who have children with SN.
The bad news: I need to sort my head out a bit because I'm finding it quite hard atm to when seeing other children the same age as ds, and what they can do that ds can't.