Hi all. It's my first time posting here and Ive had a bad day just after some friendly tips.
My lovely son 7 has had a rough time, I just want to brief quickly so you have some background and see if anyone has a son like mine.
. He was diagnosed with leukaemia as an infant and was an inpatient for a long time he is in full remission but often in day cares for tests as so many side effects.
He has a very small body bless him and eats a very limited amount. He was on the COVID shielding list. He has been under our community paediatrician and neurodevelopmental team since 3. He was formally diagnosed at 6 with autism although I was told he also had ADHD but to young to diagnose without further evidence etc and very recently got that diagnosis alongside OCD.
He's very high functioning and is a walking fact book. He can read now although hates fiction so doesn't try in school. He is lower level at everything in school and maths especially does not go in.
He's lovely. He is a very sweet boy and I haven't ever seen him be deliberately unkind.
He has a great (extremely literal) sense of humour and it's almost as if his life is an actual cartoon on tv he does sound effects, expressions etc for everything.
As he is getting older I feel like he's growing apart from the other children. It's not quite as "funny" and it's as if they're noticing he is different also he is becoming bigger, louder and standing out. He is mainstream and currently has no 1:1 and when all restrictions lift he will go to an outreach group in his school.
I feel he's becoming sad. He's noticing people don't react to him the same way and there's been some behaviour recently in school where he's overstepped boundary's which has broken my heart as he has come from such a good well intentioned place but his understanding of what is okay seems to be limited.
I feel like with him growing up these situations of social and emotional life are going to be happening more and more and we have no support or input or any services available to us really where we live.
I would love to give him something to enjoy and a hobby. Something to look forward to and focus on. I just have NO idea what.
He went swimming which he enjoyed. He soon got moved to the disability 1:1 group as they felt he was a risk to other. He goes to his dads house every other weekend and the Sunday just does not work.
I have tried martial arts, football, rugby and they have not worked out as he wasn't happy doing it.
He has started gaming very recently since he has learnt to read and built an amazing pyramid house playing mine craft creative but I am limiting this because the obsessional behaviour is a lot.
I have an amazing husband who is fantastic with my son and I have two other children. I have an elder child DS10 who has a hobby of some sport almost every night and we have a baby DSnearly1 but we will make sure the time is available for him to have the opportunity to do anything.
I honestly just want him to actually enjoy something.
Sorry this is long it's been a really big emotional day.