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First steps to ASD diagnosis

2 replies

cicadacicada · 01/10/2021 09:28

DS is nearly 8 and i suspected since he was around 2 that he was never the same as other children but with him being my first we just never really knew he was definitely not NT but he has so many ASD characteristics and having just started year 3 he is really struggling socially.
I do feel that it is the right thing to get a diagnosis for him? I emailed his class teacher but she seems dismissive as he masks fairly well at school. Who should I contact GP or the SENCO at his school? I know it is a long road but I need to get started just not sure how! Any advice would be great fully received.

OP posts:
Toomanyminifigs · 01/10/2021 14:08

My DS was finally diagnosed with autism in Yr4. As you say, it can be a long process. Where we are it was a 2-year wait and I suspect it's even longer now due to Covid.

As I said on another post, for my DS, the gap/differences between him and his classmates started to become really noticeable from Yr3/4. I was worried about secondary and knew he wouldn't be able to cope in a mainstream school - especially with no support - so I really pushed for a diagnosis and then for an EHCP.

In terms of first steps, do speak to the Senco. They can refer you on or if you get no joy there, speak to your DS's GP. It would be helpful to make a list of your concerns. They may ask you things like when your DS started to speak, walk, did he crawl, point, potty train etc? It's useful to try and jot them down - if you can remember!

Your DS will then be referred onto a community paediatrician. They are the 'gate keepers' to the ASD waitlist. They will see you and your DS and ask a host of questions and also talk to him. If they believe it's worth him being assessed, he will then be added to the wait list.

In the meantime, I would say it's worth doing as much reading as possible about tips/techniques to support children with ASD. Even if your DS doesn't get a diagnosis, many of these strategies are helpful for children who are anxious or struggle socially.

I would also start a diary outlining any triggers you notice that cause him distress or any situations in which he struggles. This will also count as valuable evidence, especially if you say he 'masks' at school.

Good luck!

Imitatingdory · 01/10/2021 14:41

Personally I would speak to both the GP and the SENCO. Ask the GP directly for a referral to whoever undertakes ASD assessments in your CCG - in some areas it's community paediatricians and in others it's CAMHS.

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